@invisiblevestibular: How it feels inside for me, walking with my MdDS. Many times, people with MdDS or PPPD won’t display any visual gait disturbances on the outside. This is just how it feels internally. HOWEVER, on a very bad day, for my case which is more complex, I may not be able to take a few steps at all without holding someone’s arm. Or I’ll have to take a few steps and stop, a few steps then stop again. Those are the times where it is evident externally. But everyone is different 📚 #bppv #vestibularmigraine #vestibulardisorder #mdds #pppd #maldedebarquement #maldedebarquementsyndrome #dizzy #dizziness #vertigo #nystagmus #invisibleillness #rarecondition #functionalneurology #dpt #physicaltherapy #movement #chronicillness #medicalgaslighting #vestibularawareness #neuroplasticity #retrainyourbrain #dizzinessrelief #vestibularrehabilitation #butyoudontlooksick #bouncywalk
I’ve got pppd too it’s the worst thing I’ve ever had to battle with. You feel like no one understands or believes you, you feel like your going insane adapting to this “new normal” 🥲🥲
2025-04-03 09:21:24
6
✨Stef✨ :
I just got off my first cruise 3 days ago and I feel this!! Hoping it resolves quickly! Prayers for you!
2023-05-04 22:01:48
9
kirstar22 :
This is exactly how I have been feeling for 9 weeks. I don't think my verstibular neuritis diagnosis is right. 🥺 so many doctors don't understand
2023-05-27 12:32:29
5
carolinevillamar3 :
👌this is exactly what I feel..trampoline walking. it's very frustrating 😑
2023-07-06 00:14:31
42
Katie :
I was doing soo much better for a few months, now the chronic dizziness is back 😞 it started 8 months ago after COVID for me
2023-05-18 22:20:11
1
Mollie :
Does eply or semont maneuver help? Sorry you’re dealing with this :( me too
2023-04-26 01:59:43
1
dalai :
Do you think mdds can be brought on by stress and being super busy? My symptoms reappeared after a really busy and stressful time.
2024-10-16 10:24:59
2
Alexandra Bonardi :
girl you just explained what i feel almost daily. drs been acting like im whack
2023-04-22 21:14:47
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Sarah 👁👄👁 :
Saving this to show ppl who don’t know what I’m talking about
2025-05-26 16:46:03
2
Nakathly :
And ringing in the ears
2025-08-28 19:01:33
0
Roxann Fredette :
This is the first time I’ve heard of mdds , how can you tell if someone has mdds or PPPD
2023-05-17 04:40:33
0
kbyeee :
literal representation /explanation about how I feel and it sucks! is there anything that helps?!
2023-05-06 01:03:29
1
Malia :
Facts
2024-04-21 22:02:15
0
🪷🪬Pixie Styx🪬🏳️🌈 :
that's why it feels like I'm bouncing? or rocking 😳 wow.
2024-12-09 23:56:13
2
CindyCP :
I have this too. It’s so frustrating.
2023-11-04 03:13:11
3
olivianicoleeeee0 :
THIS IS ME
2024-12-24 03:16:54
2
jackiecas1 :
I had this for 2 months. CBD/CBG gummies helped me heal.
2024-12-27 21:15:29
0
Staringdownthesun :
I just got hit with another episode. Feel for you.
2024-02-20 05:24:30
3
whiteside91 :
i get this sensation after car journeys or when i stand really really still could this be the same condition I've had it on and off for years. 🥺
2023-06-18 18:41:31
2
Carrie-Ann Cogen :
💯 just got off a week long cruise and it’s terrible!!! Like walking on a bouncy house
2024-04-29 11:14:21
1
Fender57 :
Have you tried any meds ?
2024-09-16 03:52:52
0
HavaneseMom🤎 :
I feel like i ook drunk and it's so embarrassing
2024-12-08 17:28:00
0
rena 🌿🤍 :
:( i’m so sorry
2023-04-26 10:23:50
2
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