@alexandrawideeyes: I literally had a doctor say “I’m stumped, so… can you just deal with it?” #spoonie #spoonielife #spooniesoftiktok #spooniehumor #chronicillness #chronicillnesshypehouse #chronicillnesstiktok #chronicpain #chronicfatigue

Alexandra Kopko (She/Her)
Alexandra Kopko (She/Her)
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Region: US
Thursday 15 December 2022 15:47:34 GMT
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aac_autistic
AAC_Autistic :
Oh bit you forgot the "your too young/.your so young"
2022-12-15 17:20:21
2597
ladypandacat
Lady Pandacat ♏️ :
When my doctor found out I had Hashimotos she said “you must be so tired.” and I burst into tears because it was like someone finally heard me.
2022-12-15 20:01:18
4790
jaywantstoplay
🏳️‍🌈 Jay 🇺🇸 :
Finally went to a therapist and talked about how I was told that I would just live in pain for the rest of my life. His reply: no one told you that.😳
2022-12-15 17:19:03
302
jujuwren5
Jujuwren :
Sounds like fibromyalgia which in and of itself is a diagnosis that means “we know what it isn’t”
2022-12-18 20:04:47
1345
evie.the.witchling
Evie :
It’s why I don’t even bother unless it’s an emergency anymore… they never listen and assume all my issues are because I’m fat because Heaven forbid
2022-12-15 17:52:05
203
aha_blahnana
blahnana :
“Stress” is the new “hysteria” 🙄
2022-12-26 11:56:20
1001
tracecode
Tracey Harrison :
Every. Single. Part. Of. This. Was. Accurate.
2022-12-15 17:00:36
675
chronicallycassie2
ChronicallyCassie :
Meanwhile those doctors are what’s causing the majority of your stress! 🤦🏻‍♀️😒 This is so accurate!
2022-12-15 17:02:00
327
lissah6224
LissaH6224 :
I was told my brain fog was “mom brain”. My pain is me being dramatic. I’m too young for whatever I have to show itself. Too young for surgery etc
2022-12-15 20:25:40
143
atwistedskein
Kristen :
Yes, yes, this. "So you're having fatigue? Mmm. Not v specific." "I'm not tired. I'm exhausted. I can't always hold my head up." "Huh." 🥺
2022-12-15 17:32:05
285
brianaohern3
Briana OHern :
"good news the tests came back negative" "okay so what next?" "next? the tests were negative, so you're fine?"
2022-12-21 05:22:52
1130
kin_thenerd
Kin 💜 :
Being Autistic Plus (I got more, whatev) in the medical field (studying surg tech) is so FRUSTRATING cause I HEAR you and this system makes no SENSE and it would be almost so simple to FIX
2023-12-31 03:39:13
1
jjessreb
Jess :
Yeah sadly this how it go’s. I was told to work out more I was like I can’t because my heart rate is 155 standing
2022-12-15 16:43:08
214
thebeachmystic
Linda Anne :
Story of my life! Now they say “it’s fibromyalgia. Here’s some pills that won’t help.”
2022-12-16 01:22:41
392
eclecticorange
Kendra D :
I had a doctor tell me once to eat “no more than 600 calories a day” then I’d lose weight & feel better 🤔 I was 10 lbs over “normal BMI” too
2022-12-15 19:10:38
83
destinycitycosplay
Destiny City Cosplay :
I contantly get “you are too young to be in that much pain”. Uh yeah, that’s why I’m here…
2022-12-17 01:11:05
868
weepingwillowxx
WeepingWillow :
It’s always ✨anxiety✨
2022-12-15 19:14:39
826
nestingyourlife
amanda :
so I've never had an original experience huh
2022-12-15 19:10:30
176
blueberryjeep2
D :
they literally gave me a hysterectomy because it was easier than figuring out I had a hormone issue. 😂
2022-12-15 17:08:25
130
cristyc17
Pretty the “r” is silent :
But have you tried yoga? Or have you considered it’s all in your head? -things doctors have said to me. Yep. 😡
2022-12-15 20:49:26
753
one_quarter_fae
Alex @ Little and Grim :
"Do you think it might be anxiety?" "... Losing feeling in my feet? No. No, I do not think that's anxiety." *exasperated sigh*
2022-12-17 01:24:55
36
yeetwood.mac
YEETWOOD.MAC 🏳️‍🌈🍉 :
I’ve been trying to a while to figure out why I’m constantly tired to death. 3 hour naps daily. No one will even test me for anything
2022-12-16 04:15:03
57
kallard1317
Kaitlyn Allard :
Yup!! Turns out I have Celiac Disease. You listed many of my symptoms, not all, but many! Worth asking a GI doc ❤️
2022-12-15 17:24:38
437
therhaevynsnest
ʀʜᴀᴇᴠʏɴ☿️ :
My husband has DDD and AS. A specialist told him he wants him off any pain meds his pain doctor put him on, because he needs to get over himself.
2023-01-20 15:28:24
7
peanutbuttercup375
peanutbuttercup375 :
Have you been checked for MTHFR can make mental health more complicated
2025-03-09 12:00:12
0
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