@hanahssecret.acc:

Hannah Burnett
Hannah Burnett
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Tuesday 22 August 2023 03:01:46 GMT
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pj_ongheen :
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2023-08-22 10:48:59
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2023-08-23 07:47:55
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with @Becki Jones basically being bullied off the internet, i wanted to open up about something that’s been going on for a few months now❤️‍🩹 all of these comments are from the last 2 months, some very recent. i’ve had this video made for a while, but just couldn’t post it. for a few reasons, 1 is i didn’t want to give these people attention, i didn’t want to make these comments get even worse. i was also a bit ashamed. but bullying online is so common and normalised i want to use my platform to talk about it. because that’s what this is, it’s bullying.  people lose their lives because of comments just like the ones ive been getting. they’re not just words on a screen. they’ve been thought out, typed, and sent. it can easily push someone over the edge. people genuinely do believe i’m faking all of this. i’m a fraud, i have munchausens, it’s all some huge scam. that’s what i struggle with, the fact a lot of people out there actually believe that’s the truth. that ive spent the last 7 years faking seizures for some reason, that ive spent a decade faking tics. i’m making up my diagnoses etc. it makes me feel absolutely crushed but i can’t let them see that.  if they were to really look into my story, they’ll see all the details that cannot be faked or forced. i cannot dilate my pupils during seizures or force my eyes to go bloodshot. i cannot fake the epileptiform activity in my brain on one of my EEG’s. the force & power in my limbs during a dystonia attack, cannot be faked. having a tube up my nose to open up my airways during a seizure, cannot be faked. the 8 infections found in my blood, cannot be faked. this is all real and has been my life for the last decade. 11 years this year since my sudden onset.  my point is, just be kind. it’s really not fucking hard. just because something is beyond your understanding, or you see one video and decide in your head it isn’t real, doesn’t make it so. people actually live like this, and it’s not up to you to decide it’s fake, we have doctors, family & friends who know our truth.  the words you decide to type in 10 seconds, can stay with someone for life. you have no idea what your words are doing to someone. don’t be the reason someone thinks about su!cide, don’t be the reason someone sits crying with their parents. don’t be the reason someone quits social media. don’t be the reason someone looks in the mirror despising what they see.  these words got to me. at first they didn’t, but with the high volume, they got in my head. i’ve been wondering “what if i am faking? what if they’re right? what if my blood results are somehow fake?” obviously this is absolutely not true, and i’m a bit nervous to admit these thoughts but that’s what these comments are doing. my mum has had to put my mind at rest and assure me i am not faking. sometimes i really worry i am (i have OCD and it plays a major role) but then the other night i had a full body dystonia attack, my spine was completely bent, my neck at a 90 degree angle, my leg was pulled up to my chest, every single muscle contracting. for a loooong time. and i just lay there in agony staring at the ceiling thinking ‘there’s absolutely no way anyone could fake this.’ and i hate that these shitty people got in my head.  yes, people do fake illness, and that in itself is an illness. but that’s rare. it’s very rare for someone to ACTUALLY be faking. please please just think about what you type💗thank you if you read all this💗 #fyp #bullying #hatecomments #onlinehate #foryou #seizures #autoimmunedisease #encephalitis #autoimmuneepilepsy #tourettes #dystonia #lymedisease
with @Becki Jones basically being bullied off the internet, i wanted to open up about something that’s been going on for a few months now❤️‍🩹 all of these comments are from the last 2 months, some very recent. i’ve had this video made for a while, but just couldn’t post it. for a few reasons, 1 is i didn’t want to give these people attention, i didn’t want to make these comments get even worse. i was also a bit ashamed. but bullying online is so common and normalised i want to use my platform to talk about it. because that’s what this is, it’s bullying. people lose their lives because of comments just like the ones ive been getting. they’re not just words on a screen. they’ve been thought out, typed, and sent. it can easily push someone over the edge. people genuinely do believe i’m faking all of this. i’m a fraud, i have munchausens, it’s all some huge scam. that’s what i struggle with, the fact a lot of people out there actually believe that’s the truth. that ive spent the last 7 years faking seizures for some reason, that ive spent a decade faking tics. i’m making up my diagnoses etc. it makes me feel absolutely crushed but i can’t let them see that. if they were to really look into my story, they’ll see all the details that cannot be faked or forced. i cannot dilate my pupils during seizures or force my eyes to go bloodshot. i cannot fake the epileptiform activity in my brain on one of my EEG’s. the force & power in my limbs during a dystonia attack, cannot be faked. having a tube up my nose to open up my airways during a seizure, cannot be faked. the 8 infections found in my blood, cannot be faked. this is all real and has been my life for the last decade. 11 years this year since my sudden onset. my point is, just be kind. it’s really not fucking hard. just because something is beyond your understanding, or you see one video and decide in your head it isn’t real, doesn’t make it so. people actually live like this, and it’s not up to you to decide it’s fake, we have doctors, family & friends who know our truth. the words you decide to type in 10 seconds, can stay with someone for life. you have no idea what your words are doing to someone. don’t be the reason someone thinks about su!cide, don’t be the reason someone sits crying with their parents. don’t be the reason someone quits social media. don’t be the reason someone looks in the mirror despising what they see. these words got to me. at first they didn’t, but with the high volume, they got in my head. i’ve been wondering “what if i am faking? what if they’re right? what if my blood results are somehow fake?” obviously this is absolutely not true, and i’m a bit nervous to admit these thoughts but that’s what these comments are doing. my mum has had to put my mind at rest and assure me i am not faking. sometimes i really worry i am (i have OCD and it plays a major role) but then the other night i had a full body dystonia attack, my spine was completely bent, my neck at a 90 degree angle, my leg was pulled up to my chest, every single muscle contracting. for a loooong time. and i just lay there in agony staring at the ceiling thinking ‘there’s absolutely no way anyone could fake this.’ and i hate that these shitty people got in my head. yes, people do fake illness, and that in itself is an illness. but that’s rare. it’s very rare for someone to ACTUALLY be faking. please please just think about what you type💗thank you if you read all this💗 #fyp #bullying #hatecomments #onlinehate #foryou #seizures #autoimmunedisease #encephalitis #autoimmuneepilepsy #tourettes #dystonia #lymedisease

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