@thepocket.podcast: Thats a pretty hectic thought to live with… episode 2 with @Bradley J Dryburgh is out now! 🫶🏼 #thepocketpodcast #healthproblems #staystrong #perspective
(1) when I met my husband, when I told him about my CF, the first thing I asked him not to do, was google it…
2024-02-16 06:56:49
10
Justine Decorby :
Life expectancy is constantly rising ! My Husband had Cf unfortunately he passed at 28 3 years into our marriage..I Would do it all again🥰
2024-02-15 08:16:41
81
Whistley Snipes :
Have you tried Hyperbaric oxygen treatment
2024-02-24 02:15:55
0
Jemma Lee :
a dear friend of mine passed away in her sleep on Australia Day 2022, just before her 27th birthday. She'd had a mostly successful double lung transplant, survived the years covid free but fell ill
2024-02-15 13:10:39
3
Chriso5473 :
my brother went through exactly the same thing, he met an amazing woman who it didn't make a difference just did it, there son turned 18 last year
2024-02-15 12:55:01
1
jose jimenez :
I totally relate to that mindset. growing up with hemophilia, I didn't want guilt of feeling like I trapped someone in a difficult life with me.
2024-02-17 03:38:54
1
Bradley J Dryburgh :
Soph is the real mvp 🩵🩵
2024-02-15 08:33:25
29
thelegendbro1 :
I 100% think I’ll die alone, and what makes it worse is that most of the reason I keep going and keep trying is the small chance I’ll find my future family
2024-02-15 12:52:59
14
PeachyKarma :
Lost 2 childhood very close friends to CF. Sister and brother. Their mom is the strongest most amazing woman I know. Miss them so much.
2024-02-23 03:24:18
1
Sebastian Amezquit66 :
Bro I’m the same I scared that I’m gonna die alone :(
2024-02-15 10:36:23
4
6_mysticsniper_6 :
i lost my sister to cystic fibrosis in 2019 and its horrible to think about how she travelled most of the world and she only made it to 22 it prty sad
2024-02-21 20:54:49
2
Jøêłÿ🤙🏽 :
I can relate to him
2024-02-15 09:10:13
2
Alissa :
My mum had cf I respect this man so unbelievably much he is so inspirational
2024-02-16 13:28:15
2
❦ :
Almost started crying 😭😭😢
2024-02-16 07:00:49
0
Snow :
This is so great. I had one friend with CF who passed at 23, but I also have another who has been with his partner 20yrs & doing great.
2024-02-17 13:08:04
0
sarahheiney43 :
😳😳😳
2024-02-23 06:47:04
0
Rachel :
🥺🥺🥺
2024-02-21 05:40:48
0
Rga :
🙏
2024-02-18 01:01:30
0
KelcieMarie :
😳😳😳
2024-02-17 12:47:14
0
Chris Griffin :
❤️❤️
2024-02-15 08:31:59
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Snow :
I never thought this, until my partner of 3yrs told me that he was breaking up with me because he could not handle the complications etc of my T1D
2024-02-17 13:04:54
0
_cosmic_girl_x :
The one woman on MAFS who has CF said she started using this new approved drug Trikafta which extends life expectancy to by 30/40 yrs
2024-02-16 16:03:39
0
Lulu lucia Ahmed bogart :
Males with cf struggle to have children 🥺
2024-02-15 08:57:12
0
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