@honeybunbaybay: Im sorry im all over the place i cant watch this to edit it anymore i just want more people to know about the manufacturer changes and sudep or hear other stories. I miss you Soph #epilepsy #seizure #idic15 #dup15q #grief #loss #sudep #suddendeaths #sad #sister #supernumerary #sadstory #epilepsytok #griefandloss #epilepsyawareness #xybca #fypシ #foryou #seizures
Please reach out to a lawyer. Keep the medicine she was taking. I’m so sorry ❤️
2024-04-10 16:34:54
46675
girllovinjesus :
Hi love I’m Emily I have epelepsy caused fromgreymatterhederiatopia it’s on my frontal lobe I’m praying for you I do get different meds from manufacturers
2025-07-03 20:08:44
1
stqrs.alliss💕 :
I'm so sorry It's been a year and 2 months since she passed
2025-05-11 12:39:52
1
sharaannbishop :
I have epilepsy. I’ve had it since 4. I don’t really know what type I’ve got but I don’t think I’ll grow out of them. It is super hard yes but I’m sorry for your loss and I hope you’ll be okay
2025-07-06 20:27:48
1
SavageTutu :
So much love from another epileptic 💜 I think for a lot of us our meds are so strict to begin with (take exactly at X o’clock) so we don’t mess ourselves up, the idea of a manufacturer messing with the meds we’re used to is bonkers to me.
2025-07-27 17:48:48
1
Lovemybffs :
😔I’m so sorry for your loss especially when it just happened I know it’s hard for you I’m sorry for everybody that knew her just know shes watching you always from the sky she’ll always be in your heart ❤️🩹💗🥺
2025-07-20 09:13:48
1
Reynaldo Villarreal :
I have epilepsy and idk man I’m scared honestly I try to calm down but I’m scared
2025-06-10 06:35:15
1
JeNaYab.😝 :
My brother has seizures and he ate lunch with me one day and he went to the bathroom and started seizing he is only 15 and then the next week he had another seizure when I wasn't home and he fell on a glass table he went to the ER and he was no longer diagnosed with hyperglycemia he was diagnosed with epilepsy
2025-07-25 15:12:08
1
Brittany Rizzo :
I was diagnosed this year… I just had 10 during my 3 day eeg. I fear this most. I am so sorry for your loss. Thank you for educating even during your loss.
2025-07-28 19:46:35
1
Reina Mendes :
My deepest condolences, I am truly sorry. Sending love ❤️
2025-07-12 06:57:02
1
Sarah :
my man passed to this two months ago, I was in basic training now I’m going home to a grave💔I never understood why he did everything right
2025-07-25 14:31:15
1
deepope4 :
What is a SUDEP ????
2024-04-11 00:20:47
44
I love my gf :
my mom have seizers and u have to make sure they don't hit there head and choke on the toung
2025-07-24 02:22:36
1
mentalmemess :
In Germany it’s not allowed to change the manufacture of epilepsy medication, because of this 😪 I am so sorry
2024-04-11 13:34:52
11483
siahsmommy5_1_10 :
I know this video is old but I too am searching for answers. My son was 15 & passed away 2 months ago due to a seizure after falling sleep. He’s always had absent seizures that I seen never convulsing. He hasn’t had any issues since 2019 as well & then suddenly died of one. I was never once informed on SUDEP when he was diagnosed with seizures in elementary school. His diagnosis was frontal, lobe partial seizure on his EEG finding. I’m now finding out some people only have nocturnal ones. This just seems so rare and sudden doesn’t make any sense. 😢
2025-07-10 01:35:14
1
Blue_eyed_wonder :
I am so sorry for ur loss 🙏🙏🙏🥰🥰🥰 I was just diagnosed with epilepsy the end of May 2025
2025-07-29 00:35:18
1
♠️🪶𝓐𝓫𝓫𝔂🪶♠️ :
I have them I’m so sorry that is one of my biggest fears
2025-04-26 23:19:29
1
SaucySarie :
Oh my god. This really hits home for me. My daughter died of SUDEP on 1/22/22. Big huge hugs from me
2024-04-10 16:14:59
23901
lauraplybon.us :
I bet it was not the same, and you need to hire a lawyer
2024-04-10 20:26:24
12536
its_xoxonana :
The medicine that I take is kepra and it makes me feel sad of mad :(
2025-07-15 00:32:50
1
kennedy :
is it generic? unfortunately the FDA allows +/- 10% of the active ingredient in each pill. so it really is a gamble if you get a full dose or more dose than usual. and i’m so sorry this happened.
2024-04-10 16:49:01
20349
Shanna M. D. :
I’m so sorry for your loss. 😢
2025-07-23 08:06:48
1
Baby saja #1FAN!!!!!👹👹👹👹👹 :
Me and my baby sis has epilepsy and she died at the age of four two weeks ago
2025-07-11 10:30:37
1
Romelia Baquedano :
My friend has seizures, too. He goes to my high school His name is AJ and my teacher wasn’t ready for his seizure. He starts putting his head down well it happened like all of a sudden he started making noises. That’s when his seizure starts, and the teacher said everyone go to another classroom while they called the nurse and assistant principal, and a teacher was there for him. And when they got there, they checked on him and make sure he’s OK. And then a teacher called his mom.
2025-07-17 14:30:26
2
cassandra_angeleque :
I do not have epilepsy but thank you for sharing and bringing this awareness to light! This could be a key factor in saving so many lives! Thank you for saving so many lives! 🫶🏽🫂
2025-07-21 18:07:02
1
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