@annierayee: No we arent just tired!!!!! #chronicillness #chronicillnessawareness #mecfs #chronicfatigue #chronicpain #medicalgaslighting #disabled #disability #disabilitytiktok
When in school I used to get home and go to sleep straight away and wake up in the morning for school and repeat and my dad always used to call me lazy, when I got diagnosed later on he felt so bad
2024-05-11 13:12:00
2018
/ /r/a/i/n/y/ /d/a/y/ / :
got diagnosed with this right after I made the cheer team. I can't leave the team now and my coach doesn't believe my illness
2025-07-20 21:13:32
0
skylormitchell13 :
This almost sounds like something that I go through form time to time. There's periods of time where the simplest of tasks takes all my energy and physical strength to do. Then I have to rest for hours before I can do another task. Sometimes I can barely lift a 15lb bag of dog food or grip a cup of water. This sometimes lasts 2 or 3 weeks, then like it never happened, everything clears up and I can go about life like normal, being able to mow my own yard, play with my child, and even lifting 3 or 4 15lb bags of dog food at once.
2025-07-15 16:01:48
0
pariii🎀🧸💋 :
can cfs involve socialising/ hanging out with people and then being extremely fatigued for days and weeks?
2025-07-17 01:39:13
0
Emma Carmichael :
forever being called lazy 😭
2024-05-08 17:49:18
905
its_just_TessO :
I was diagnosed with this + fibromyalgia + POTS last year 😞 I've been in denial about it and keep trying to push myself but I can't do it much longer...
2024-06-08 14:00:58
29
zero :
this sounds like me but im diagnosed fibro, joint hypermobility, autism🤷♂️guess that combo can present similarly
2024-05-08 17:35:34
45
PheasantTail :
Thank you for posting this and bringing awareness to our illness!🙏
2025-07-06 17:19:59
1
Will :
I’m just getting by energy-wise working part time but I need to work full time by the end of next year to get health insurance when I age out of my parents plan. I’m so worried to work full time
2024-05-19 01:04:11
10
Nico the Emo :
wait. I thought that these were just part of having POTS. I knew I was chronically fatigued but uh… I thought it was normal with POTS. it's a separate thing!? I just put chronic fatigue on doctors notes. I feel kinda bad now.
2025-07-06 12:31:04
0
joujou :
Kinda sounds similar to autism.
2025-03-07 08:10:48
34
aliciasfarmer :
I have been trying to explain everything that you just said to a doctor since my early twenties. For me over the years it has gone up and down and how severe it is but anything I do comes with a price
2025-01-29 22:02:44
14
LucyNZ :
Got diagnosed at 16 . Now 38 abd havent had a episode since i was 22 i feel cured but worrie everyday it will come bak
2024-06-01 10:18:35
38
Keepitalltheway5 :
Can This develop or is this something you had forever because😳.. this is me 🚩🆘
2024-12-11 14:43:13
0
Kat Noel 🌈 :
So interesting! I am kinda shocked to say this but— I have actually never heard of this. Thank you for sharing. I’ll have to look into this. I am on a war path with my docs for a Diagnosis
2024-08-18 04:58:01
9
✝️🙏🦋Belle🦓💕 :
I was told it's just fibromyalgia
2025-02-07 02:25:15
0
chronically_mary_life :
I’m in the severe stage 😢💔
2024-05-12 18:43:37
257
Noo 💓 :
I’m moving house atm and it’s unbearable I am so tired
2024-05-14 08:45:18
31
Vic :
Great video , thank you ❤️
2024-05-10 06:29:57
0
paige 🇺🇸🆘 :
i’m currently diagnosed with fibromyalgia but i do not think i have that, these symptoms you’re describing sound like my “flare ups”
2024-05-14 03:32:47
344
bunny :
this sounds like me right now... how does one go about a diagnosis?
2024-05-23 21:16:07
550
fenia ♡ :
it sounds like what I had for months right after my covid infection. but it got better after about a year, does that mean it was something different?
2025-02-19 08:25:37
1
Ms 5000 Watts :
I managed to get to a more “normal” life by never pushing myself passed limits. This was only possible because of a support system of course. Gradually the pool of energy I can pull from every day 1/2
2024-06-19 19:25:12
1
Linda Doolan :
I’ve been very sick with this for over a year now, it has been completly debilitating. Has anyone else developed Myoclonus Dystonia with ME/CF? My body constantly twists and jerks now
2025-02-21 10:05:51
1
Mischka :
7 yrs severe, bed bound. instant follow. thanks for giving us voice ❤️
2024-06-06 05:37:46
42
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