My mom had Dysautonomia, and after around ten years of constant testing she died from her illness. Still don't know what it truly was.
2025-07-08 18:16:34
0
audrey.sienna :
Recently saw a video that most drs look at pots patients as hypochondriacs and crazy. If I have it, I don’t want a diagnosis bc drs are judge mental enough.
2024-07-18 01:13:08
57
kaylaintampa :
I have positive ANA (1:320), and my bp crashes when I lie down to 80/40 (but is fine standing & not pots or orthostatic hypotension). I’m at a loss and dk where to go from here
2025-05-14 11:17:45
0
papercuts.and.heelhooks :
I was told there was nothing wrong with me. I was over weight and too young.
2024-10-21 14:52:07
0
JaeBlue :
I have MG, this is crazy. Also Lupus and Eds here in MT the dr told me there’s NO tilt tables in my state to even test for POTS!
2024-07-17 20:31:04
1
user2460790567394 :
Please do a video on Dysautonomia. We spent years going to different specialists before my daughter was finally diagnosed with it.
2024-07-17 20:31:17
41
kdouglas811 :
How is AAG diagnosed
2024-07-22 02:28:39
8
Abby B :
I have AAG! I was diagnosed with it after I was diagnosed with gastroparesis and POTS. I’m on IVIG for it but unfortunately it doesn’t cure it but helps with symptoms.
2024-07-21 17:47:46
17
jessica kennedy :
How do I find a gastro dr familiar with this. My 17 has AAG and POTS. I’m struggling to find her a gastro who has knowledge of both.
2025-05-21 15:56:19
0
Scarlet :
i know i have pots i just cant afford to go to the doctors and get testing
2024-07-17 20:24:30
6
dctabdistlol :
I have AAG! I get IVIG for it!
2024-07-20 22:06:43
6
Katie :
Have these conditions, POTS and AAG, being diagnosed more since COVID?
2024-07-17 20:08:43
21
Audrey Lavoie🇨🇦🩷💛🩵 :
How do you tell the difference between the two?
2024-07-17 20:18:51
8
Rose Rickard :
i have some of these symptoms plus having low blood pressure have been tested for pots and lots of other things and still no diagnosis
2024-07-23 23:52:55
4
Erica Lynn :
POTS WARRIOR for 16 years
2024-07-23 03:59:51
13
GOD'S DAUGHTER➕🙏 :
I was diagnosed with poly neuropathy then 2 years later pots. I have alot of muscle weakness even trying to eat food my muscles get too weak to eat and
2024-10-30 08:46:05
0
Staci Inglis Carroll :
So I think I have AAG not POTS my cardiologist said he could not understand that when my blood pressure plummets my heart rate doesn’t increase like it should.
2025-01-09 22:58:08
0
I am me 🍉 🇨🇦 :
I don't faint though.
2024-07-17 22:07:31
2
abby :
Thank you for sharing about AAG & bring awareness to the rare condition. Very few medical providers and people know about it. I’m in my mid-twenties and was dx with AAG about 2 years ago.
2024-07-18 05:51:56
13
Gina :
I'm a relatively new follower, so forgive me if it's been done already, but I'd like to see CIDP get some attention. If it's been done, let me know!. Chronic inflammatory demyelinating polyneuropathy
2024-07-19 01:56:44
10
~Maria~ :
I have to say, having AS, Crohns, Fibro, I thought was extremely miserable but POTS has been the icing on the cake for me. But don’t give up getting your diagnosis!!
2024-07-19 00:26:53
0
ArtMom :
I just learned about tethered cord and how it can be comorbid with pots. Can you do Tethered Cord?
2024-07-18 12:19:25
6
hey_you_im_jessica :
I was diagnosed with AAG today. I was told that I have POTS a month ago. Just out of curiosity I wanted to see if there was any information on here about it.
2025-01-17 01:27:10
1
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