@lillydowns: today was refreshing because I had no appointments of my own for the firsr time in 8 weeks (I finished TMS!) 🥳 #dayinthelife #chronicillness #tubefed #ivfluids #makeup #dutchbros #tubefed #medicalsupplies #Lifestyle #Vlog

lilly downs
lilly downs
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Region: US
Thursday 18 July 2024 05:17:32 GMT
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stephkkelly
steph kelly :
Omg the ‘but thats ok cause they had really nice bathrooms’ IT MAKES ALL THE DIFFERENCE 🤣
2024-07-19 15:42:43
132
vondabeauty
✨ t ✨ :
What do you mean when u said “when it came right back up”?
2024-07-28 05:58:34
11
sarahsperr
Sarah Sperr :
Actually tried the strawberry horchata today. Don’t live near a Dutch bros but I was visiting my aunt this weekend
2024-12-14 22:28:39
0
itzzzzz.kim2
itzzzzz.kim2 :
Is your medication financially covered? If not I can’t imagine how much all of that would cost if you had to pay out of pocket 😳
2024-07-18 05:41:52
107
enachilada
ena :
Where’s your pj set and long sleeve white tee from??
2024-07-21 04:23:38
3
lily.emmanuel
Lily :
Can you talk about your ivig experience?
2024-07-20 04:03:29
5
tvking12346
user4411728042190 :
Doesn’t anyone find her beautiful? I do
2024-07-19 22:47:00
15
lucyyc13
lucy :
HIII BAE🥰🥰🥰
2024-07-18 23:27:07
14
hlfulmer
hlfulmer :
My daughter gets ‘liquid gold’ (IVIG). She’s 6. You are amazing!!!
2024-08-25 01:42:12
0
crypt0cunt
crypt0cunt🫡😘💯 (call me CC) :
Can you pre-make your infusions? So u can just plunge and go? Or can they not be mixed into a syringe that early?
2024-07-21 14:41:27
0
brokenandbendy
Ashley :
wait thats so smart running ur fluids first thing in the morning, i needa start doing that💀cuz then i forget all day and then am strugglingggg at night
2024-07-18 05:46:22
58
_girl_interrupted
_girl_interrupted :
I have to give IGg as well IM. I have Common Variable Autoimmune Disorder. What is your diagnosis in regards to getting IVIG?
2024-08-08 19:24:03
0
mia.grace77
Mia :
How much does all of this cost you?
2024-07-18 19:48:48
0
fluffnstufflife
Janette Ewen :
You are so pretty! And I love your style 🌷
2024-07-28 19:24:10
0
bradswiftney
Brad Swiftney :
I feel you on the fluids! If I don’t get enough in, I find myself prone later & regret not getting enough! It seems trivial to many who don’t understand, but it’s seriously a game changer in my day
2024-07-18 05:32:05
20
darktourm_aline
J' :
Just a soul who live life to the fullest , this is beautiful ❤️Keep going . Always know that you're amazing for who you are ❤️
2024-08-07 20:41:11
0
courtlor
courtney lor :
Do you get really cold when taking fluids? I was so cold my body couldn’t relax, idk if gets better if you have them daily, jw!
2024-07-27 03:15:05
0
carimarcha
EMiliCa :
Hi! Saw you were off of TPN, how are you without it? super happy for you!!💖💖💖 I also chug fluids like you do and not as refreshing haha
2024-07-19 01:00:18
1
camila.suarez_
Camila Suarez :
💜
2024-09-10 02:56:06
0
katanaeasy
Katana Easy :
@
2024-08-06 04:13:33
0
3dsnme2cool
vettevalentine05 :
💖💖💖
2024-07-23 06:09:48
0
jazlyn.1215
jazlyn :
question, do you get sick/vomit every time you drink or eat something?
2024-07-18 12:50:05
7
hphucccccccccccc
mynameisphc :
Giống hệ miễn dịch bị thụ đônhj á
2024-08-11 15:33:34
0
marlinman999
Marlin Man :
U said u went for dinner but I thought u could not eat by mouth. Just curious how that impacts u
2024-07-22 22:05:05
0
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