@thekristinexy: Oct 3rd- We entered into maintenance phase today!! It’s a milestone considering there will be a bit less clinic & hospital visits, which means less chemo treatments going directly through her port. But that also means daily oral chemo at home given by mom and dad through her port. We are always on top of her medications, but now there will be 2 added chemo meds to give her on that list. Lola will be receiving steroids for 5 days every 3 months along with chemo through her port, spine, and a spinal tap. This will be the schedule for the next year & 1/2. March 2026 couldn’t come any sooner?! Lola was frustrated in the morning because she couldn’t eat or drink anything and she knew sissy couldn’t come with us as soon as she saw Tais Tais come over. So grateful for my momma for taking the day off to watch baby sister so hubby and I could both be there for Lola! 🥹🫶🏼 Lola started her oral chemo called 6MP at 100% dosage. This chemo is known to wipe out the bone marrow and suppress it from growing new blood cells. This is the same chemo during the second phase of treatment that led us to be hospitalized for 3 weeks…we then found out from her oncologist that she was tested to have a gene that is sensitive to this chemo. 🤦🏻‍♀️🥲 It’s crucial for her treatment to continue to kill off all leukemia cells, but the side effects are tough too. Her ANC level can tank which will either lead us back to the hospital and or quarantined because she will be so easily susceptible to getting ill. They will be checking us weekly for the next 2 weeks to see how her body’s handling it and adjustments will be made as necessary. The sick season is upon us too, so this momma’s anxiety will be THROUGH THE ROOF! Maintenance, theoretically, should be easier according to doctors and textbooks…but this is still a large hill to climb. We’ll take it one step at a time and continue to lean on the Lord with hope that everything will be perfectly okay. 🥹🥲 #lolastrong #childhoodcancerawareness #childhoodleukemia #childhoodcancersucks #childhoodcancerwarriors #childhoodcancer #teamlola #lolasarmy

Kristine Xiong 🩷

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Region: US

Monday 07 October 2024 01:36:37 GMT