lilly downs
Region: US
Friday 11 October 2024 21:43:11 GMT
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Gi :
It took me a few years to accept that a week is basically 6 days for me bc I need a full do-nothing rest day if I don’t wanna be exhausted all the time.
2024-10-12 13:43:22
6
Olivia :
Will you be effected by the IV fluid shortage?
2024-10-12 00:35:50
52
fatma 🫶 :
this is so real ❤️thank you for sharing this, you're amazing 👏
2024-10-11 22:33:03
83
Gillian :
Wait I’m starting IVIg infusions next week do you have any tips 🫢
2024-10-13 04:25:05
2
_simply_sare_ :
i’m also trying to learn this 🫶🏼 i beat leukemia almost 6 months ago and struggle trying to calm the thoughts when resting
2024-10-11 23:16:54
49
emilybaxx14 :
i'm so glad i'm not the only one who uses the ice packs from infusion delivery
2024-10-12 22:39:52
1
jade ;) (Taylor's Version) :
I find these days so so so hard mentally
2024-10-21 19:02:20
0
addy :
are you having any troubles getting IV fluids with the shortage due to the hurricane?
2024-10-11 22:56:01
0
chioma 🤎 :
if you only have the energy to get 10% of your list done, and you do that 10%, you’re still giving it 100%! we gotta be more kind to ourselves ❤️🩹
2024-10-12 14:16:42
3
Bellbell :
Hi
2025-05-22 07:21:31
0
hannah.lasalle :
Thank you so much for this reminder, I feel so guilty when my body forces me to rest but “you can’t have good days without the bad ones” HIT
2024-10-11 22:09:34
4
hisolelady03 :
I too struggle with chronic illness and I know exactly what you mean.
2024-10-12 03:39:48
1
lancestevens449 :
rest is very important!!!!!
2024-10-12 00:23:59
0
KATE :
my queen so proud of u
2024-10-12 01:19:18
1
Kyleigh :
IVIG headaches are the absolute WORST!!!!
2024-12-16 22:55:25
1
saturn 🍬 :
this is so real. this is a really hard part of being disabled for me
2024-10-13 19:59:53
1
carlyn (taylor’s version) :
Absolutely needed this reminder today. Thank you. 🫶
2024-10-14 01:27:52
1
Dissolve Dysautonomia :
The IVIG headache is rough for sure. Sooo harsh espec feeling like sludge. Embrace that side effect as the IVIG life can get worse-(from my weekly ivig experience any way).🩵 Keep up your strong ways!
2024-10-14 16:46:15
2
Dani Harris552 :
Not the ivig headaches 😐 feel better soon
2024-10-12 00:43:36
2
Chey 💕 (shy) :
My body’s been recharging for months now and I’m still not charged
2024-10-13 17:44:41
4
Grace :
Any tips for zofran constipation
2024-10-12 02:58:43
1
HRHMissyJo :
Oof I feel this. It’s really hard with my other half being very type A and has to be going and moving and working all the time.
2024-10-26 21:01:02
1
dedes_nmi :
me watching this of chronic illnes 🤡🤡
2025-04-07 13:15:23
0
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