@jennaromano: Feels like this is never going to end 🥲 #tsw #topicalsteroidwithdrawal #topicalsteroidawareness

Jenna Romano
Jenna Romano
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Region: US
Monday 26 May 2025 16:02:28 GMT
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cinnamon0ats
𝕸𝖎𝖈𝖍𝖊𝖑𝖎𝖓𝖆 :
I told my derm that I still haven’t found my trigger yet for my severe eczema (I try a lot of different things) and she was basically like “ya that sucks.” And in my head I was like “u genuinely don’t wanna help me find out.” They just don’t care.
2025-07-28 01:28:13
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kisses_jules
kissesjules :
See an allergist!! I had an allergic reaction to a medication and mine helped me immediately. I hope you feel better soon 💜
2025-07-25 08:56:38
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kjovan82
kjovan82 :
me too
2025-07-28 15:34:44
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patriciaanne_1970
patriciaanne_1970 :
My doctor would just straight up ask me what do you need from me. I appreciated his honesty. When we had a question he would pull out the medical book and we would look it up and discuss it together.
2025-06-20 04:30:47
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chrisg156
Christopher Grande :
Have you tried asking chatgbt and not going to a doctor
2025-05-26 17:27:48
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lorieh_tsw
LorieH_Tsw :
it gets better, girl! was immobile and my skin is finally basically almost normal after almost 2 years.. praise be! also more doctors i am talking to are aware of it.. so thank goodness its getting a bit mroe recognizd!
2025-06-09 12:24:39
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ahope1991
✨Whitney✨ :
Nothing they prescribe will help you!! What were you on the steroid for to begin with?
2025-05-26 17:27:08
1
carrie_chaiken
carrie_chaiken :
I was in the middle of tsw and had one doctor tell me I didn’t have eczema and I asked what I have then and he couldn’t give me an answer. It’s so exhausting advocating for yourself so much. I’m so sorry girl!!!!!
2025-06-13 11:39:15
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alyssa.harpold
alyssa mae :
have you tried taking Benadryl at night & Claritin in the morning? i did that and it cleared up in a few days
2025-06-19 03:27:43
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cassidykaschmitter
✨Cassidy✨ :
I’m so sorry… 💘 I’ll be praying for you.
2025-06-25 05:28:16
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melissabrown_norwex
Melissa :
Sorry that you are going through through all that I am a chronic illness warrior, so totally feel the pain of the help system. Praying that you get some answers in some relief.
2025-06-23 09:07:29
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englishrosee
Ella Rose🥀 :
this hurt my heart to watch as i have been there and know how much worse it is that what your even explaining. I was also put on dupixent 2 doses whilst in TSW and had to stop becasue of a reaction & then got hives. I am a year later but please know it does get better and you are stronger than you think. I don’t want to say don’t except meds but they only made everything worse for me. Sending you so much love♥️
2025-06-19 03:22:01
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s.mart252
Gabriela :
Las Vegas sucks! i was sick for 6 years went to SO many hospitals until I moved to AZ and issue was resolved. FYI Tumor
2025-06-19 05:29:49
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laur0684
laur0684 :
I feel ya..my last IgE came up as over 36,000. They genetic tested me for hyper IgE syndrome but nope. No answers 🤷‍♀️
2025-07-21 06:54:01
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southernohiocouple
Ash&Drew :
Same issues took Zyrtec and Pepcid together everyday and most of my symptoms have resolved
2025-06-19 18:06:31
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jenmilleth
Jenny :
Dupixent made me 💯 times worst. Two years later and I’ll still get the occasional flareup with my eyes, neck and face. It’s not the eczema itch, it’s a burn that feels completely different. I regret taking it so much. Sending you healing vibes ✨✨💖
2025-06-09 14:55:03
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somegreengem
okay.motomeme :
The only dermatologist I could find in my small town in Mexico who knew about TSW put me on Elidel. Later on I found out about Elidel withdrawal and stopped it. I'm pretty much healing alone at this point. Can't trust doctors no more.
2025-07-16 03:09:27
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vibeswithmya
Myathevibe :
They don’t want to learn , they don’t want to even acknowledge because it causes them to actually get to the root of it.
2025-05-28 20:59:17
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lmrxtattoos
BENNY ✨🖤🌙 :
Ohhh honey! I’m so sorry your going thru this. Thank you for sharing your story 🖤
2025-05-27 04:08:17
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hayleestone09
Haylee Stone :
Def look into MCAS. So sorry you’re going through this
2025-06-20 01:32:43
0
lizmoseley
Liz Moseley :
I’m so sorry. I look just like you right now. The most frustrating process. Sending love.
2025-06-19 14:07:53
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rpeckk
Becca | new mom :
Thank you for speaking on this!! I wouldn’t know what TSW is unless people like you share! I was knowledgeable enough to pass on TSC for my 6 MONTH OLD and try something else first because someone like you shared there story! 🫶🏻🫶🏻🫶🏻 I’m sooo sorry you are going thru this! Many prayers your way! 🫶🏻❤️
2025-06-20 17:02:17
1
pammymami
P :
I’m sorry baby :( it never gets easier - Dupixent has helped me a lot
2025-06-13 02:10:09
0
abby_baby89
💜🔥Abby_Baby🔥💜 :
My goodness,sis I TOTALLY UNDERSTAND YOUR PAIN & FRUSTRATION SO MUCH‼️Their HAS got to be a change in our medical system ITS GOTTEN WORSE & WORSE & WORSEEEE!!!🤦🏻‍♀️😣
2025-06-20 00:08:09
0
666tomatoes
zigzag :
Ugh …😭🥺my heart hurts for you
2025-07-23 04:42:09
0
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