@christina.santiago: The mystery is FINALLY over. We finally confirmed today Mateo does have a congenital defect that has caused his aspiration. When Mateo was born, we had a traumatic delivery and he was diagnosed with idiopathic bilateral vocal cord paralysis. There was no clinical reason he has this, other than suspected birth trauma from our forcep delivery. I blamed myself for a long time and felt guilty he struggled because of me. He had fully recovery of movement in his vocal cords by 7 months, but still was struggling. I was pushed off many times as he never had failure to thrive and “passed” a swallow study at 3 months. After much persistence and a second study, we confirmed he was silently aspirating. Since then, we have been in limbo still unsure why he was having issues. His ENT finally agreed to a laryngoscopy and bronchoscopy to rule out congenital defects. And today we got that diagnosis. And confirmation this is something we can have fixed. Today affirmed I was not crazy. I knew something was wrong, and I am so grateful I kept advocating and pushing 🥹🤍 Always trust your mom gut 🫶 #bvop #bilateralvocalcordparalysis #aspiration #dysphagia #laryngomalacia #bronchoscopy #laryngoscopy #laryngealcleft
Oh mama. There’s nothing like the acknowledgment that you weren’t crazy. Sweet Mateo 🥹🤍
2025-05-29 23:01:44
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j :
So happy you have answers💕 sending you good vibes ❤️you’re an amazing mama
2025-05-29 21:58:49
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Morgan Pitcock | IVF Mom 💙 :
Grateful you have answers and there is a solution 🫂
2025-05-30 17:03:43
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Charity 💛 |mom life :
I’m so happy for you! ❤️you have been fighting for this for so long!
2025-05-30 00:43:39
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shan824_ivf :
This has me so emotional. You fought so hard and never stopped advocating for him. As a fellow parent of a child with a congenital defect, I know how powerful it is just to have answers. It’s truly one of the best feelings in the world.
2025-05-30 00:25:19
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Brittany | Boy Momma :
I’m so happy you guys got an answer. Good job momma always advocating for him. ❤️
2025-05-30 01:49:35
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Sara | SAH Girl Mom 💗 :
Oh mama I’m so happy you have an answer with a fix. Rooting for you Mateo!!!
2025-05-29 22:07:32
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Soaking In Sunsets•IVF Parent :
You got him here 💜 You know something was wrong and you kept advocating. I am so happy you have an answer and that it's something that can be fixed!
2025-05-29 22:14:01
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Jonjalee | mama :
So happy for you guys 🤍
2025-06-02 16:33:08
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Steven’s Mama🩵 :
im so happy you got answers!!!
2025-05-30 01:55:11
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💜 Bri 🩵 :
YES MAMA 🙌🏻 Always listen to your instincts. I’m sending all the positive vibes 🙏🏻
2025-05-29 21:55:30
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a_layne :
What a relief to get some answers! Thinking of you all and these next steps 🩵
2025-05-29 22:19:10
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Heather | first time mom :
Amazing work mama! You advocated and didn’t give up! I’m so happy you have gotten an answer and a path forward! Let’s go Mateo!!
2025-05-30 02:02:29
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homewithangiemae :
Glad to have answers mama. What a relief! 🥰
2025-05-30 02:37:52
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Leesh :
Oh yayyyyyy!!!! So happy for you guys ❤️
2025-05-30 00:30:41
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Marianne LaBrash :
What a relief!!! I’m so happy you have answers 😭 Us mamas know best. Thinking of you all 🩵🩵
2025-05-29 23:18:25
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Jessica :
I’m so proud of you for always being his advocate!! And yay for answers and a solution! 🎉🤍
2025-05-30 03:08:39
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east_coast_mom :
Hes so precious!!
2025-05-29 23:24:48
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jacque • WFH boy mom :
So so so happy for you to have a plan moving forward!!!!
2025-05-30 19:54:28
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Liana! :
aw tina so glad you finally got answers
2025-05-29 22:14:28
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Dennysse Ivy I Mom Life 🦋 :
Love that you got clarity 💘
2025-05-30 05:26:53
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Mandiii :
That’s awesome!!!! 🥰
2025-05-30 20:31:12
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Marina :
my daughter's laryngeal cleft wasn't found until she was 5! it was a long road. it is now suspected that my 5 month old 3rd child also has an LC. join the laryngeal cleft support group on Facebook. its been a huge help
2025-08-07 19:07:37
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milanimamaaaaaaa :
I’m so happy you received this news and he can get better.
2025-05-30 03:49:41
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Ashlyn| IVF Journey✝️ :
I'm so happy you have answers for him and a solution ✨✨✨ Such amazing news Mama 🫶🏻🫶🏻
2025-05-30 18:39:39
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