Jules
Region: AU
Sunday 06 July 2025 23:10:15 GMT
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Charles 🏛️🌱 :
Is the difference between this and a seizure the postictal state? Obviously a seizure has tests and stuff but I'm too scared to ask. I have medically suspected POTS and I convulse so much it's so scary but sometimes it feels seizure like and I have the postictal state. I . need to know if I should be scared for my life or not
2025-08-02 01:11:53
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Chronic Disney fanatic :
Hi my name is Roxie I’m an icu nurse and also I am a chronic illness girly with a tubie, ehlers danlos syndrome, endometriosis and gastroparesis, fibromyalgia and others! My hubby also has type 1 diabetes and mum has Ehlers fnd and pots so I’m doing my best to raise awareness for the community of people! Whilst also helping my own mental health and others. Please give me a follow and see my pinned videos to join the positive trend #dancingitoutchallenge. Would so appreciate your support ❤️stronger together ❤️you don’t have to dance it’s just the trend name. A smile and a wave or example of your chronic illness journey to the music and the tag and hashtag ❤️
2025-07-08 17:10:15
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angel :
Sorry I couldnt read a word of it was too fast
2025-07-28 01:46:05
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PadraigMarshall :
Ive seen seizures but that scared me I cant lie hope your okay❤️
2025-07-10 21:46:00
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Dr Nathan Keiser :
“Seizures” or PNES can occur- I just did a video on this all about cerebral hypoperfusion.
2025-07-10 14:50:44
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Pardeep Singh :
May I ask you, if it has ever happened immediately after getting up from sleep
2025-07-09 13:17:12
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naturallygreenzebra :
however those of us with POTS and epilepsy or other types of seizure disorder like me, a POTS flare can most certainly trigger a seizure. it's important to know the difference! thank you for helping educate!!!
2025-07-10 16:16:00
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Nikki :
Hi there! I have POTS and hEDS. Is it possible to have these types of myoclonic jerks while still conscious? I’ve had episodes like this while still conscious. I rarely ever lose full consciousness from my POTS but can get very close, my hearing and vision will go away but I still feel like I’m conscious ?
2025-07-09 23:29:55
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djellioutelies8 :
الله يشفيك و يعافيك
2025-07-19 14:31:42
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Disabled and Proud :
My convulsive syncope episodes look extremely similar to yours, especially the eyelid fluttering. I went to an epileptoligist and they ruled out seizures (epileptic and PNES) which was a huge relief 🩵
2025-07-09 13:58:57
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Maxine Keith :
I get these ALL the time with my POTS
2025-07-13 03:30:15
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SuddenlyStampered :
I get those from my pots
2025-07-09 16:38:04
1
Starlight :
Hello! I just found that I have been having pre syncope convulsions. It was very confusing and I didn’t understand what was going on. I have even been embarrassed in the ER when I have this occur. I’m trying to move forward. Thank you for sharing. 🙏💙
2025-07-09 18:38:35
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SompisiJ :
This is so scary .. u are very strong to live with this condition and still survive ❤️🥰
2025-07-24 22:46:21
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wonderaliceland1865 :
never had this but I am having a lovely day of being energetic while laying down and going into presyncope if I even sit up
2025-07-12 23:02:50
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de_fec_tive :
This also happens to me!
2025-07-23 01:51:25
1
Jennifer Pittman :
This is what my daughter experiences with pots. I have never been able to get a video of her doing this. Thank you for posting and sharing 💕 The first time I witnessed it I thought it was a seizure. It happened in front of her Dr and she confirmed it was not a seizure.
2025-07-10 23:50:50
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простигосподи :
Thank you for spreading awareness!
2025-07-24 12:43:25
1
Ocean :
such good information to have!
2025-07-12 19:36:29
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spice1romance1books :
This is what happens to me but they haven’t diagnosed me
2025-08-02 03:42:01
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Lacey🎀 :
@Lacey🎀: All of you that suffer with epilepsy are so strong❤️I lost my sister on the 23rd of this month to seizures my latest post is about her and in the comments is her go fund me account which shares her story if anyone is interested x
2025-07-26 00:39:40
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Ashley Glover💜 :
now I'm curious if mine look like this the last time I fainted fully out my bf said my eyes were rolled back and I was moving around and mumbling but no words. I was dreaming when it happened so I have no memory but when I woke up I was sitting on my feet leaned up on my bfs legs
2025-07-22 06:39:30
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Renee Kimball | Author :
@Renee Kimball | Author: Has anyone had a 4+ day flare that is so awful you can’t even turn your head or roll over without getting dizzy and nauseous? Blood pressure tanked to 80/40 all four days? Can’t even stand at all? Is this my POTS or do I need to go to the terrible ER (they do nothing and send me home worse than I arrived). Anyone tell me I’ll come out of this? :(. I’ve pounded sodium and electrolytes and water 🤷🏼♀️. Help!
2025-07-15 02:10:15
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Ari :
Awwww precious May God bless you 🙏❤️
2025-07-18 02:03:07
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