Sav | Chronic Illness Living ✨
Region: US
Monday 07 July 2025 23:40:23 GMT
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SimplyNevaeh :
Oh god if I hear drink more electrolytes and eat salt one more time I might actually scream. The way so many people think that magically fixes the illnesses is wild. I recommend blue lotus gummies for sleep if you have a lot of pain and it prevents you from getting sleep or good sleep. Please take it with food I hide it in my apple sauce because it tastes so disgusting
2025-07-08 03:37:48
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Wolfie 🐺 :
Following. I currently take 2500mg+ salt, increased potassium &magnesium, 2mile walk daily, compression socks
2025-07-09 18:26:36
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Mar :
Antihistamines 2x a day and a Pepcid! Not gone but so much better. Thinking it’s MCAS but no doctor will diagnose so took it into my own hands!
2025-07-10 18:29:52
2
daisyisbookish :
Swimming!! It helped me recondition my body and get stronger without having the issues I do with other forms of exercise—dizziness, nausea, tachycardia etc.. it helped me feel stronger and lifted my mood too. It regulates my temp and is good for ppl with postural issues 💖
2025-07-09 01:17:26
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Aly :
"floor time" Is great for my POTS and hEDS. I lay flat on the floor with a rolled up blanket or towel under my neck low back and knees. (basically anywhere that curves naturally) it actually does a lot for me decompressing my joints after a long day. lay there as long as you need. perhaps scream into the void about being angry at my own body for not working right.
2025-07-08 01:28:21
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jojobellig :
gluten free 😩 dairy free also helps some people but i’m not ready to face that yet
2025-07-08 23:13:52
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Sarah :
honestly ik everyone says compression socks but abdominal compression has helped me so much more. I wear a corset and it’s also cute lol
2025-07-08 04:51:10
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LJ🍒✨ :
I get lactated ringers twice a week from my husband instead of regular fluids. He’s an RN.
2025-07-08 22:41:19
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Llledc n vs. Vinta v :
Could we see what symptoms you have if you feel comfortable? It’s interesting to see how it effects other people
2025-07-10 07:09:20
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kayleerowan :
heating pad on the joints at ALL times, cbd cream/lidocaine on any painful spots, keeping a notes page on your phone of all the things that help during a flare up to go back to in times of need, and giving yourself lots of grace🫶🏻 sending you lots of light!!
2025-07-08 00:03:47
7
angrylez :
Mini table top rechargeable fan, set of two is like $28. Best decision ever, got the one w a 5000 unit battery so it lasts all day. Helped me stop getting heat stroke inside, I’ve got it blowing on me rn
2025-07-08 16:38:41
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Jämilie |-/ :
one of those grabby arm reacher things so i don't have to lift my armd above my head
2025-07-08 20:25:31
0
e1ectrocutie :
a wheelchair literally gave me back so much free time and the ability to go out without being in pain
2025-07-08 02:00:37
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Kat :
Treating mcas has helped everything else (hEDS and pots) calm down so much. I still don’t have an official diagnosis because my dr doesn’t “believe” in it, but the mast cell stabilizers she agreed to trying have already been a massive game changer just 2 months in.
2025-07-09 04:52:01
2
chloe :
IV fluids took me from passing out up to 10x a day, bed bound unable to attend high school to attending college full time + working and passing out once in the past year
2025-07-08 21:30:34
2
marissa :
a C1-C3 spinal fusion for CCI and a filum excision for occult tethered cord both secondary to hEDS
2025-07-08 22:20:18
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maddie :
calcium channel blocker helped me so much! I also have Raynaud's and it helps with that as well
2025-07-09 02:01:11
1
Morganmarieec :
Accepting my life is gonna look a little different and will continue to change
2025-07-09 04:39:26
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Monica Reads🍬📚🇺🇸 :
coq10 helped my symptoms alot
2025-07-10 23:31:00
1
yami :
laying on the floor and putting my legs up whenever I get any symptoms. has helped reduced my nausea so much !
2025-07-09 16:42:31
1
Brianna Bingman :
Drink 16oz of water with 1/2 tsp salt and 1tbsp lemon water when I wake up. Minimal gluten and sugar
2025-07-09 00:16:23
1
bendyqueenigm :
Sit up as much as possible. Too much rest will make POTS worse. Track your sodium intake.
2025-07-09 01:09:04
1
✨Julia🏴☠️ :
Get a small fan and position it at the foot of ur bed. Whenever it’s hard to breathe or if your overly hot have it blow accross ur face, it helps (if the fan it too big it too close it is annoying tho so position it carefully). I also recommend floor time
2025-07-09 09:50:16
0
Whitelines54 :
Bemer, Hyperbaric, Vagus Nerve stimulation
2025-07-09 01:28:48
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Redleatheryellowleather :
I drink simply lemonade all the time and I have a ryiobi fan I take around with me which is apparently a crime lol , and I’m in a wheelchair
2025-07-10 03:05:32
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