Peace Love Lupus
Region: US
Thursday 10 July 2025 14:19:01 GMT
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Sheri Chism Morris :
I’ve had chronic runny nose for over a year. But no other cold symptoms. It’s so bad my nose is cracked and i have to use aquafor on it. Wonder if this is just my lupus?
2025-07-10 17:35:53
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Cynthia Utti711 :
I thought the hives are a symptom of lupus. I've had 3 flares just being in the sun̈
2025-07-11 05:12:44
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gracemsburr :
MCAS?
2025-07-10 14:57:20
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BettySue Hughes :
Did she test you for NCAS you need to ask your allergists for that look it up I think you have that I’m going to an allergist to be tested for that and you sound like me and I really think that’s what you have research it really research it please
2025-07-10 16:20:43
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Yaritza Soriano :
I have auto immune chronic urticaria, I break out in hives for anything my lips swell so bad
2025-07-12 17:58:51
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Dani :
MCAS is often overlooked and people are misdiagnosed with idiopathic urticaria
2025-07-10 18:58:20
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Erin :
I get this! Thank you for verbalizing what is on my mind after every appointment.
2025-07-10 17:44:20
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Qpr321 :
I have chronic idiopathic urticaria. Pepcid and Zyrtec every day. I’ve only had hives three times in the last four months.
2025-07-10 18:12:40
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Ally :
I’ve had chronic urticaria for over a year, but my blood work is fine 🫠
2025-07-10 16:22:16
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🦋LIV🦋 :
Same I have to take allegra everyday max dosage then I have to switch bc then I get immune to it
2025-07-10 14:56:16
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_shhmeggles :
i have this. my ENTIRE body covered in hives every day for a full year, i was put on a lupus med (i don’t have lupus). it went away. now it’s back and 4x the normal dose of 3 types of antihistamines doesn’t work.
2025-07-10 19:51:15
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joymarr1905 :
I feel you I also have lupus
2025-07-11 15:30:14
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Rebecca Winter :
My son has this!! I keep expecting he will get an autoimmune dx at some point. His body is a lot like mine.
2025-07-12 13:23:12
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jenny :
I have Urticaria I’m on Allegra for it.
2025-07-16 17:07:02
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stabbyjustice :
I think i have that! I'm always soooo itchy!
2025-07-11 15:48:25
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Alexandra Walker :
🙃
2025-07-13 04:50:48
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Just Lo 💜 :
I upgraded mine last year. 🥺
2025-07-10 18:53:24
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Blueram95 :
Same!!! I take Cetirizine daily and use a prescription ointment…i especially get them after a little bit of time in the sun. I now projectile vomit after eating garlic. I swell up and rash after eating cold, peel and eat shrimp…yet, i can eat hot, cooked shrimp. Allergy testing does not show anything…I have Mixed Connective Tissue with Lupus characteristics, Celiac skin and stomach, POTS, ent thinks i have Sjrogen’s even though the lip biopsy came back negative…I am tired of it all!
2025-07-10 14:41:01
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.. :
I got those test, some on mu skin, and the ones for 60 food did blood for safery. I tested for 50 items of food 😏 had to go on a cleansen diet and re tray eating some food after Two years of shots. I have mctd and on biologics.
2025-07-23 02:03:18
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Heather - Living with Lupus 🦋 :
MCAS? Common with lupus
2025-07-11 23:48:09
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