@sicavee: I might have never been diagnosed with hEDS and its comorbidities if I hadn't seen someone share about it online. That one post made a huge difference in my life. So now, I'm sharing my experience too- hoping it might help someone else get the answers they need 💞 #ehlersdanlossyndrome #edsawareness #disabledcosplayer #hypermobilespectrumdisorder
Do you have any tips for managing eds? my brother in law was diagnosed with eds recently and there’s a chance that my partner could be diagnosed in the future. I want to help them anyway I can.
2025-07-14 05:10:00
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b.e.t.04 :
same!! it’s a struggle
2025-07-15 02:37:49
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MizukiTheFox :
how are you doing in the heat it's been brutal for my similarly affected folks
2025-07-14 01:33:23
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Charlie Irons :
Because when you're the galaxy's most effective bounty hunter you learn how to overcome anything...
2025-07-15 12:05:22
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chaosdragon13 :
as one who also suffers from ehlers-danlos....I agree
2025-07-14 20:38:02
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Lord-of-the-kitties 🇨🇦 :
I used to have a friend with that. They called themselves "collapsible for storage convenience and ease of transport."
2025-07-15 16:02:33
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fmsocialist :
Me too bestie
2025-07-15 00:16:52
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conc3nt :
okay
2025-07-13 22:01:36
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Germichael Finley :
I know a girl who has this. she got a ballet scholarship and was always boasting how great she is because of how easily her flexibility came to her. now she's wheelchair bound and can barely move because she exacerbated it all those years .
2025-07-14 14:18:24
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wimboy :
same, it sucks ass fr
2025-08-03 03:33:11
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