@just.mels.journey: Replying to @Amy my dystonia and pots experience #dystonia #Dysautonomia #dystoniaawareness #melsdbsjourney #chronicillnessawareness #rareillnessawareness
I'm one of those people that has just Dysotomia but sometimes does end in me having a seizure, but I'm also supposedly diagnosed with a seizure disorder, so I think it's triggering the seizure disorder, but I have heard of people who just have it without having a seizure disorder just made me think to make this comment because of you answering this person's question
2025-07-15 06:13:10
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Lori Mitchell :
Is pots related to you dystonia
2025-07-15 15:05:14
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MotherHugo :
my first onset of pots symptoms was when I was a child, probably about 9-10, I remember not being able to run like the other kids could. we were taught how to count our own heart rate and my PE teacher didnt believe me when i said a really high number, until he checked himself lol. things got really bad when I was in colorguard in high-school, and when I was in college my health dropped even further. I still didnt get diagnosed until I was 22 (in 2022)
2025-07-15 04:57:05
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Pam :
🥰🥰🥰🥰
2025-07-19 05:36:02
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