Heather - Living with Lupus 🦋
Region: US
Tuesday 15 July 2025 15:42:12 GMT
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user9248327969891 :
i haven't started my medication im scared does it even help with the pain and brain fog?
2025-07-22 04:23:04
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Erica Nall :
Yesss!! The upper arms are my WORST spot followed by my upper saddlebag area and inside of my knees. Or my scalp.
2025-07-25 06:38:55
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Tia Juanita :
That body burning sensation I’m tired of it I went to ER they told me I had shingles
2025-07-22 16:51:46
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Marian 🇦🇺 🇱🇧 ✝️ ✝️ :
I have all this but the cause was Neurological lyme disease. sorry you have to also go through this
2025-07-18 16:58:00
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Lani Hilton :
I get what feels like hard pebbles under my skin too
2025-07-15 20:33:08
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Mari :
The fact that we can’t even be poked in the arm it’ll bruise and hurt for days.
2025-07-16 14:50:12
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Tina Welton :
I understand and you weren't complaining just stating facts
2025-07-18 00:47:13
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Icena.nosaurs :
My pain is in my upper torso. All of it 🥺
2025-07-15 16:15:16
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Traclynn :
Im the same way I also have squeezing around my rib cages and if I go out to shop at one store Im in bed for the next 3 to 4 days the pain is intense but nobody understands.
2025-07-15 22:46:29
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Worm :
I been having joint pain,muscle weakness,brain fog. Numbness in my fingers and feet can’t sleep at night and extremely tired all the time. 2 ANA blood test come back positive. Dr kinda blows it off like you’re just getting older and gives me anti inflammatory drugs. Very frustrating because I know this can’t be normal.
2025-07-15 15:53:07
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Linda schatz :
mind is always tired. wanting a back rub but if hubby does it hurts to much
2025-07-16 15:18:27
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Laura :
I’m in a flare now and I am in so much pain
2025-07-16 12:07:00
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Shawn Manica :
Me Too¡!! I'm suffering so much & my only daughter could care fn less what Fybr& Osteoporosis & Arthritis & Mental heath due to loss of family... I would love to be told by my daughtv, after watching my granddaughter 15 months old & A Vert Very Very hyper 5 yr old!!! it's Taxing..
2025-07-17 04:22:02
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Berker :
lately the bottom of my feet burn all the time..I definitely underestimated this diagnosis
2025-07-17 01:22:27
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Kimberly Ritco :
35 years with fibromyalgia it’s a difficult life. People don’t understand unless they deal with it.💜🦋🥰
2025-07-16 20:59:15
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Leslie Figueroa-Romo :
Same 💜 nobody understand.. they think I’m just lazy
2025-07-17 05:05:02
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Sha :
my to 😥
2025-07-20 11:13:56
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robshybird :
I had fibro diagnosis and it was low progesterone. maybe testing??
2025-07-18 14:59:57
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Clare | Spoonie Life 💜🥄 :
My skin is either on fire or itchy! Drives me crazy and robs my sleep
2025-07-21 08:35:27
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Jessica Burrell :
I feel like this all the time
2025-07-16 21:03:09
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user9248327969891 :
i just got diagnosed with fibro too and i get all your symptoms 🥲
2025-07-22 04:17:45
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🪴 Carla Lyn 🪴 :
I am having the skin and muscle pain so bad today. It hurts to be touched anywhere.
2025-07-15 19:53:27
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Samantha 🇺🇸🇮🇹 :
yup I keep pushing through it have had it for years ever since my spine surgery 15 years ago
2025-07-16 21:12:19
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Maria Ocampo :
I go through the same
2025-07-15 21:17:24
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Guy Little :
do you get the fibro itch? my arms crawl ! I itch before a flare
2025-07-16 13:46:19
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