Heather - Living with Lupus 🦋
Region: US
Tuesday 15 July 2025 22:14:43 GMT
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Dauna Spence :
Lupus is a puzzle that needs to be put together piece by piece, by a highly responsible and intuitive rheumatologist. Keep searching, if you haven't found one yet. Best of luck and blessings to everyone.🙂
2025-07-18 17:58:01
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Celeste :
I have lupus also, extremely painful
2025-07-16 20:09:48
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Jessica Marie :
I am still fighting for my lupus and EDS diagnosis, currently have fibromyalgia gastroparesis migraines and vestibular disorder. just seen a new rheumatologist and I think I've finally found me someone to listen, I'm waiting for blood work🤞
2025-07-16 07:25:26
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Tassany | Mom Coach :
Our stories are so similar…that was 2014, it took me four years to get a diagnosis despite my ANA being 1:2480.
2025-07-15 22:22:01
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rie20050 :
So my mom has shrojrens sorry can’t spell and I started feeling weird like two years ago with my joints and my nerves and kept getting utis and bladder infections so many weird things would happen and also have a lot of stomach issues I do have anxiety so I thought maybe that last what it is but noticed being tired and my blood pressure is high getting random fevers and now I get achy and nerve issues
2025-07-15 22:25:55
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Janet :
It's going down all these routes that is so frustrating and having to see almost every Specialists there is.
2025-07-16 00:24:03
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The Chronic Creative :
Interesting I had thyroid issues too and was previously misdiagnosed with Hashimotos and put on hormones but we determined it was an autoimmune attack from something else. I think that something else is uctd/lupus & sjogrens but still trying to prove it. I meet all criteria except don’t have specific antibodies but I have a genetic immune deficiency where my body can’t make antibodies
2025-07-15 22:35:45
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Okla_Shay :
💜🦋👑
2025-07-16 21:55:19
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🦋Lachicabonita🦋 :
There is my butterfly rashes ☹️😭
2025-07-17 16:11:34
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☆Eve ☆ :
I started with really bad swollen lymph nodes, I went to the OR to get one removed. That same ENT who did my surgery suspected autoimmune but my other doctors were doubting me. Lord was he right
2025-07-16 14:11:51
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angelaaaronkemp :
me and my PCP thought it was RA... go to my RA dr for a million tests and 2 weeks later on my followup it wasn't RA.... but FULL ON LUPUS
2025-07-15 23:06:12
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