Dr. Shanny
Region: US
Wednesday 16 July 2025 20:23:01 GMT
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🦝TrashPanda 🦝 :
Can gastroparesis be intermittent?
2025-07-17 19:14:27
2
JillianLeigh00 :
You seem like an amazing provider 😊
2025-07-18 11:42:10
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Anjegirl :
I lost my gallbladder and then had a gastric band failure. I vomited every day for 10 years before I could get it out. Now it just took 4 days for me to go after a colonoscopy. Small meals are all I am able. Have them eat fresh pineapple to break the food down faster.
2025-07-18 22:57:14
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coletteadele4 :
Why can’t you get domperidone? I’m in Australia and I have this one
2025-07-17 06:41:58
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tay ❤️🔥 :
i have gastroparesis, comorbid to my ehlers danlos. it’s fucking dreadful to treat and even worse to live with.
2025-07-17 05:08:21
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Mary Katherine :
Diagnosed two years ago, not diabetic but got nerve damage from a Nissen fundoplication that then slipped and had to be undone. Life is up and down. Good days and bad but still trudging on! Been to Mayo found a great doc and now trying some meds. Finding lots of people who are in the same boat as me and thankful that I don’t what I’m feeling isn’t just in my head. If that makes sense.
2025-07-18 22:55:45
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chronicmickey_edswarrior :
I have it and have a severe form severe form of it.
2025-07-18 19:15:11
1
Bee Sunshine :
I just lost my 23 year old daughter 2 months ago. It all started with gastroparesis, then eds diagnosis, MCAS, and a host of other comorbidities followed. Her last hope was TPN, and she died one year after starting that. No GI wanted to take on the risks of treating her. I am thankful people like you are knowledgeable and willing to help. Our family will never get over our loss. 💔
2025-07-17 15:08:09
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Diary of A Lupie Girl :
I had pancreatic neuroendocrine cancer and had a whipple and ended up with an ileostomy. My body likes to swing from slow moving digestion and dumping syndrome. Very rarely a happy middle ground 🙃
2025-07-18 22:46:23
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Jordan :
I have gastroparesis. Took me over two years to get diagnosed and saw so many GIs. Once I was diagnosed, I tried so many medications, but they either didn’t help or caused adverse side effects. I now have a GJ tube after having a successful NJ trial, and while I didn’t want a feeding tube, it saved my life. I also have intestinal dysmotility, so jejunal feeds are hit or miss on whether or not I tolerate them well, but my quality of life has improved significantly. I still deal so many symptoms on a daily basis because I also have POTS which contributes to my nausea, but I’m no longer vomiting multiple times a day. There’s a lot of grief not being able to eat the foods I used to be able to (my GI encourages me to still try to eat a little by mouth everyday), and that’s probably been the most challenging for me outside of the symptoms. Sometimes I do still cave and eat a little bit of something I know won’t digest, but luckily with my tube, I am able to drain it if it starts making me too nauseous or causing too much pain.
2025-07-17 02:40:53
1
Jenn Lasko :
I was born with it and at 48 my quality of life is diminishing and my er visits are increasing. I cant tell you how many times I've said mom I just can't do this anymore. Im scared all the time and I miss eating. Those who don't have this please count your blessings and have a big bacon egg and cheese for me. GPL1 drugs are doing this to people every single day too.
2025-07-17 23:14:27
1
Rae_bans :
idiopathic Gastroparesis here and pyridostigmine was the only med I responded to. Besides that the things that have helped the most are: compression on my LOWER abdomen (upper made me nauseous), creatine (really helped with being able to tolerate more food and fluid at once), psyllium husk fiber (but not too much), and Lion's Mane. The rest was figuring out little "meals" that I actually liked and tasted good. Fluffy yogurt has been a game changer for protein intake because even my little treats could be a protein source. I also do better if I do vagus nerve exercises throughout the day and alternate between standing and sitting at work. Walks at lunch. NO STRAWS 😭 My dietician saved my life with that - it makes me bloat SO much worse. I'm so glad you're at least compassionate about the diagnosis! I was handed a packet with a few sample meals and was told good luck! Did much better when I went from 6 meals to 12 (once an hour. really just chronically slowly eating all day, stopping 3 hours before bed). Most helpful person was my dietician, not my GI, so I hope you have a trusted dietician to send them to!
2025-07-18 21:26:52
0
Kati :
You understand us so well. Gastroparesis sucks. I have a feeding tube and a central line. I get tube feeds and tpn. When I eat within minutes I look like im 6 months pregnant and it hurts so bad.
2025-07-18 23:42:48
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rogue 🪷 :
I have it due to Ehlers Danlos 🫠
2025-07-16 21:38:23
199
HeathenHart13 :
I have it, myself.
2025-07-18 08:23:34
0
Jessica 💙 :
Low fod map diets are tough especially for picky eating teenagers. The pain after eating sucks.
2025-07-18 10:40:53
1
Amanda :
I've been on Reglan for 4 years. Now I'm on Trulance.
2025-07-18 03:46:01
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Theresa Lynn :
Was diagnosed with severe GP 3 days before my 21st birthday…I’m 27 now and am on TPN…but was okay on J-tube feeds for a while but developed Vascular compressions and think my whole GI tract is not working right at this point!🫠❤️🩹(1)
2025-07-18 15:51:40
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Jenn :
I have literally vomited food I ate 48 hours prior and it looked exactly the same as it did when I ate it 😅🙃
2025-07-17 16:24:36
87
Mor :
Motegrity was great for clearing out my intestines and that’s about all it did for my Gastroparesis
2025-07-18 22:51:29
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terynlong :
Botox did wonders for me!!! I had 12ish injections for my severe gastroparesis, and I haven’t had one in two and a half years now. I did not settle and kept pushing forward with my doctor. It took 5 gastros though to find one that would help
2025-07-18 23:15:28
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Katy | IFS Dietitian :
I work in eating disorders and 80% of my clients come in with gastroparesis and it is so hard to get folks to “treat” it and actually eat more calories instead of less!
2025-07-17 05:01:57
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Miinion :
I love it 😅 not 😒 my food especially meat loves to stay there for whole day then get sick day after because it spoiled within my stomach then of course passes
2025-07-18 00:34:57
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Mary Rickard Huston :
Fellow doctor - idiopathic gastroparesis since childhood. Life is a struggle. Bowel obstruction, SBO, intussuception etc. Meds: Motegrity, magnesium, pyridostigmine, Linzess and intermittently erythromycin. Gtube for venting & draining. Jtube for feeding and supplementing. Long road
2025-07-18 21:39:14
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paellanotienechorizo :
Mestinon and cromlyn sodium before meals has done a lot for my gastroparesis.
2025-07-18 22:26:22
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