@skynews: The #mother of a #baby boy, who had 22 medical appointments with nine different doctors before being diagnosed with a rare genetic condition, wants all #newborns to be tested for it

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Region: GB
Sunday 20 July 2025 06:03:09 GMT
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muslim.zara3
muslim.zara3 :
I am a widowed mother in Gaza, raising four children alone. My 9-year-old son—my entire world, my only family is dying in my arms, and I am powerless to save him. His small body is weak from hunger, burning with fever, shaking with sickness. He no longer has the strength to cry, only weak, this just tear my soul. I hold him tight, whispering words of comfort, but I have nothing to give him no food, no medicine, no shelter. Just my trembling embrace and desperate prayers. We have lost everything. Our home is gone. Our life, shattered. Every day, I search for anything anything at all to ease his suffering, but there is nothing. Not even clean water. Around us, only ruins. Above us, only fear. We live in endless terror, in grief, in pain beyond words. I have already buried too much. Now, I watch my child slip away, and I can do nothing. If you are reading this, I beg you from the bottom of a mother’s breaking heart help us. The smallest act of kindness could mean life or death. A single meal. A dose of medicine. One more heartbeat. Please, do not look away. Do not let my son die forgotten. Let your kindness reach us. Let him live to see another sunrise.
2025-07-20 07:07:18
54
mahomi81
Naomi Jane :
@Nanny Amies Parenting Support good to see this being highlighted nationally.
2025-07-20 09:47:02
221
emlaw000
Emlaw :
Im not tagging Laura, as she's had 1000. But it's sooo good to see this being spoken about and awareness being out there. I'm so sorry for all those effected. I hope this awareness saves other dear babies 💕
2025-07-20 10:01:35
36
lisamhind
DaffodilsandDaisies 🌼 :
Apart from the fact that this needs testing for as routine, why are doctors dismissing parents concerns when they know that something isn't right with their babies?
2025-07-20 10:25:41
53
natalielstuart25
Natalie Stuart :
It’s quite a huge expense for saying not every baby will have a genetic condition, we’ve been waiting 8 months for our son’s genetic results and been told up to a year for wholesome genome sequencing… in the meantime it’s just get on with it! So adding more pressure wouldn’t be helpful
2025-07-20 12:28:40
2
shannonking753
Shannon King :
Genetic testing should be done at birth. That way more babies can get the care they need sooner
2025-07-20 09:26:43
81
emmapryde5
emmapryde5 :
22 appointments 🙄 Drs fail people continually and should be held accountable. I hope this wee boy responds well to treatment 💙 🙏
2025-07-20 09:51:04
34
kaseymumford5
KaseyGrace🩷☁️ :
Oh my boy, I’ll never stop fighting for you 🥰💞
2025-07-20 20:12:23
8
timdemirjian__
FedEx OFFICIAL :
Faith
2025-07-20 06:53:45
0
mrsw4rden
Katie Warden :
I hope this is taken seriously and some action is taken to help support
2025-07-21 18:59:31
0
smileefacee_x
Kim_smileefacee :
I didn't even though SMA was a thing untill we were asked if we would contribute to a research trial! something so simple should 100% be part of national screening!
2025-07-20 07:48:07
18
jay_mxrris
jay_mxrris :
There thousaoujds of genetic conditions they will never be able to test for them all unfortunately 💔
2025-07-20 13:14:29
2
ronaldkasasa
Ronald Kasasa :
Not possible to check before being born so a parent can decide if is ready to go through it or not.
2025-07-20 06:16:36
4
ssempa21
Capybara :
Speediest recovery for cute little baby!✨
2025-07-20 06:56:38
20
ultra_the_great
Stephen Schultz :
Oh my gosh.
2025-07-20 06:07:44
3
temuorqkael
ORAKLET FRÅN TEMU :
7 october
2025-07-20 11:48:24
0
yust098
Just me :
OMG
2025-07-20 06:24:43
2
nicoleleah1994
Nicole🤍 :
Bless him 🥺
2025-07-20 10:23:01
3
sare2348
J :
God bless him ❤️🙏🏻✝️
2025-07-20 11:38:12
0
sir.walter17
Sir Walter :
😂😂😂😂😂😂😂 Ok
2025-07-20 07:19:40
2
anitamclaughlin17
anitamclaughlin17 :
if you followed @Nanny Amies Parenting Support you would see how heart breaking this condition is . PLEASE PLEASE test baby's when their born ♥️🥰
2025-07-20 14:45:17
1
leanne.30
leanne.04 :
I’d never heard of SMA until @Nanny Amies Parenting Support began spreading awareness
2025-07-20 08:18:36
23
eilidhmillar1
Eilidh Millar :
@Nanny Amies Parenting Support
2025-07-20 07:48:49
23
mrssummons
DebbieSummons :
@Nanny Amies Parenting Support
2025-07-20 07:37:53
47
phantomloo
Phantom loo :
I’d never heard of this until @Nanny Amies Parenting Support it needs definitely more attention
2025-07-20 07:52:28
44
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