Maria Lena Walls
Region: US
Wednesday 23 July 2025 14:05:24 GMT
11326
895
290
48
Music
Download
Comments
Susan Campbell :
I was diagnosed in 2000 so ive had way more than 25 yrs. I was a nurse who couldn't do the job I loved. I was able to get on disability but would rather been able to work. the pain was unbearable most days and flares were like a slow dying process. im doing much better with lower stress not working and retired I still flare but I have an awesome Dr that understands it. most meds I allergic to.
2025-07-27 17:15:15
1
June Morelock Trask :
I have been told a different diagnosis from multiple providers. RA and PA and OA and now fibromyalgia. I am literally in pain 24/7. Nothing helps. It’s been about 9 years. I’ve given up and suffer through it because Doctors just don’t care. So if you have info I’d love to hear it.
2025-07-27 16:04:12
1
David555 :
diagnosed 6 years ago by the head of rheumatology at the Portland VA hospital. now she thinks I have a neurological problem also. got a new primary last year and she laughed at me and asked me "who told you that". like I was making it up
2025-07-27 17:43:00
1
Sandra Williams4941 :
Will Fibro show up in abnormal ANA tests?
2025-07-27 18:24:32
1
Sandi :
Diagnosed in 1994 at Mayo after local doctors and University of Iowa Hospitals fight know what in the world to do with me. It was so difficult to find published materials about it back then! I was 23.
2025-07-27 14:22:09
1
EnzoLove_ :
I was dx’d at 20, then again at 45. No one will listen to me about my back pain. Had to go to the ER for an MRI which showed unrelated conditions in my back. I feel dismissed all the time.
2025-07-25 01:59:28
1
Anja Too :
Hey! Thanks for reaching out. I’ve had it for 14 years, the pain, fatigue and mental side of it are my biggest struggles. Am finding it is getting worse recently. Was practically bed bound for a few years but it calmed down for a few years. Now it’s returning 😩 Thank you for caring! 🙏🏻🙌
2025-07-25 16:08:52
1
Marisol :
Recently diagnosed with Fibro, roughly about 3 months now.
2025-07-27 16:01:24
1
luvcara13 :
had it for 15yrs. I've been seen by over 20 doctors, pain management and rheumatologist. I've yet to find a medication that I can take that works. My doctors either push me off on somebody else, or say sorry. I don't know of anything else that I can do for you. I get tension migraines from my neck pain 2-3 times a week which wipe me out. I'm absolutely alone in this pain battle and it's exhausting. it's shameful that this condition is so ignored.
2025-07-23 14:24:23
2
Momslove36 :
I got my diagnosis in 2017 I have brain fog, nerve pain, brittle teeth and bones, nerve pain and spasms, migraines, depression, lethargic and amongst many other slew of symptoms. I also found out that is more hereditary in women so I believe I got it from my mom and she passed it to me and now I'm afraid I'm going to pass it to my daughters.
2025-07-24 04:51:22
4
Trish Clifton :
I was diagnosed by a pain management Dr. No doctor would do extra tests to verify it's not something else. Before I was sent to the pain management Dr, I told my doctor that I did NOT want pain meds and was told "well there's nothing else I can do for you". It's so frustrating, I just wanted more thorough testing to verify it's not something else. Now I'm treated like I'm crazy and drug seeking even though I say that I do NOT want pain meds. I didn't understand, I just want to feel like I'm not crazy. It's been so frustrating.
2025-07-26 13:50:30
1
JessicaRae :
I was diagnosed in 2014. I have fibro and lupus. I experience widespread pain, brain fog, severe migraines, anxiety when I flare. I was diagnosed by a pain management specialist. I don't list fibromyalgia and usually do not tell anyone. I'm an RN and I have heard other healthcare workers talk about it and how it's just an issue.
2025-07-24 00:24:06
1
SSide :
Diagnosed towards the end of 2023, but I had symptoms for years which escalated to the point where life was unmanageable. I’m on amitriptyline which helps pain a little and sleep quality a lot. My mindset is to live with it, not in it. Still working on that. There are times I’m in despair. I think about it everyday. I wish I could go back to the before times.
2025-07-25 11:02:12
1
Jaime Crum :
I’ve had it since 2020. All over pain but mostly in my elbows, shoulders….well joints in general. My hands are also horrible. I get flares of nerve pain and back pain. Flares of fatigue that lasts for weeks. Headaches. Costocondritis. Dizzy spells. Just to name a few 😆. The medical community here is terrible. Fibro is looked at as “fake” or not as bad as autoimmune disorders. One rheumatologist that finally saw me dismissed me 5 mins into the appt.
2025-07-24 02:39:09
6
Muddygrl99 :
I went to one dr back in 2018 and explained everything that was going on and he said we'll it sound like its fibromialga, but I cant really say that is what it is because there is no real way to test. told me to do pt. which made my pain worse. let time pass had 4 knee surgeries is 4 years and went to a different dr. explained everything to her. She said we'll it definitely sounds like fibromialga but I want to take some blood and I want you to go see a R. A dr. and she put me on gabapentin, diclofenac, dulxitine, and trazodone. went to that R.A dr and she looked at me had me explained again what I am feeling and then had me do a few moments and said nope not R.A, I will realy my finding and communicate what I think to your main Dr. main dr said do PT and try those meds and if anything changes come back in. so I let time pass meds weren't helping went back in with like a 2 page list of what all was going on. she didnt even look at the list and changed the MG on my meds and sent me on my way after a 5 minute visit. I am fighting with disability, I want my dr to look at the whole picture and not just 1 thing. I am pretty sure I have started perymenapose as well. I hurt all the time. some days are worse then others and I can hardly walk. I have already had totle knee replacement almost 2 years ago and have to have an other. I am frustrated, I am tired, Im drained.
2025-07-24 02:24:37
4
Nicole :
I was diagnosed 10 years ago, and Dr's now just chalk everything up to the fibromyalgia and they won't dig further into the problems I hate to fight to get gallbladder out cause my test were normal. when pathology report came back had a begin lymph node in gallbladder and chronic inflammation and it got rid of the pain from that after removing it. and I have a list of other diagnoses, asthma, hypothyroidism, pcos, cervical ddd, throic spondylitis, lumber ddd and other can't remember exactly, and doctors just ignore me when I go in and say everything going, for 6 months have been fainting and passing out and not sure why waiting for cardiologist appointment.
2025-07-24 17:24:28
2
Tracy :
Fibro warrior for 20+ years. Many symptoms. Brain fog, widespread pain, noise sensitivity, fatigue, depression and so much more. Drs never help and make me feel like I’m constantly searching for relief. I’m on opioids but feel like a criminal when I can get relief. On a pain contract, annual check ins. Pill counts. Flares are bad and u just move on. On a few meds Lyrica, cymbalta,others. Also diabetes. Very debilitating.
2025-07-23 16:41:14
4
Kassandra Rose Blum :
I have been suffering since 2019. While body pain and weakness, brain fog. some days I feel like I can't hold my own neck up. 😪
2025-07-23 21:05:09
12
claudiarobinson97 :
I've been diagnosed since 95 with Ms and fibromyalgia and more. I was 25. I think it is better today than when I was diagnosed. I have been treated terrible by most doctors. I will talk.
2025-07-26 18:05:47
1
user91582014492651 :
Thank you!! 8 years and counting!! The constant pain, fatigue especially after activity and brain fog are real. My autoimmune panel came back negative. Didn’t fit RA symptoms so fibro it was!
2025-07-25 16:30:44
1
user9775725527445 :
Had Severe case of chicken pox at 14.. also traumatic childhood … dx at 21 now 52.. just dealt with it because I am a nurse and know the stigma … but the best i’ve ever felt was in Ozempic( paid at medi-spa) working to get it covered by insurance for weight loss becuz I need it for fibro
2025-07-24 18:28:29
1
johnbeidle :
I have had it for at least 7 years. I come from a MD family and have watched until death. I use vagus nerve stimulation and wish they had. There's a lot of science on the electroCore website about treating fibromyalgae with vagus nerve stimulation https://www.electrocore.com/medical-affairs/publications/ I use the Truvaga Plus model and also use it as a handheld muscle massager for back neck shoulder and sciatica pain. Life changing 🙌
2025-07-24 14:38:31
1
suzieb7973 :
I was finally diagnosed in 2013 after seeing 3 different Dr’s. I was on 3 different antipsychotics at that time cuz I was told I was bipolar. My original bloodwork from my 1st Dr showed I was positive for RA. So I was referred to rheumatology and RA and Fibro was confirmed.
2025-07-24 17:41:37
1
MrsMongioi :
I was diagnosed about 3 years ago. I also have lupus, spinal stenosis, undifferentiated connected tissue issues, restless leg, and osteoarthritis
2025-07-27 15:46:49
1
Ang :
I was diagnosed in 2007. It is so hard to find anyone to treat it. At first, I got the well you are a woman so it's due to stress and it's just in your head. I have been treated poorly and dismissed not only by medical professionals but by people that don't believe it because they don't see it. I also have really bad migraines so often people think I am lying. It is shameful. It robbed me of the quality of my life for years.
2025-07-26 00:22:59
1
To see more videos from user @marialenanp, please go to the Tikwm
homepage.
