callie
Region: US
Wednesday 23 July 2025 20:04:54 GMT
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Scar 🎀 :
The chronic fatigue is the hardest. Don’t want to do anything. I feel like i am ruining and wasting my young years (best years ever apparently) 😣😣😣
2025-07-26 02:05:47
31
🦇🥀🖤 Lilith LaMoon🖤🥀🦇 :
...I didn't need this reminder... I don't want to loose my job one day...
2025-07-24 12:56:58
0
Emma 🌻 :
The worst bit for me is the guilt of not being able to parent your children the same 😥 especially my youngest who's autistic and needs 24 hour care x
2025-07-28 12:00:55
0
Eirelyn *•.*+ :
It literally changes your brain chemistry like I am a completely different individual post getting sick
2025-07-23 20:44:04
155
justme kirsty :
it messes up your head, when you're in constant pain, the pain is all you can think of, I recently had to give up work.
2025-07-23 23:50:42
11
Ellie 💖 :
miss the days where my health didn’t rule my life x
2025-07-24 08:22:33
9
jediqueen77 :
It changed everything in my life
2025-07-24 15:04:00
21
thatsmyego :
i was at my worst for a half of a year. now its getting better bc of some medication but the way it impacted my whole image of life. i feel like i can never go back to the clueless happy me
2025-07-27 17:47:11
0
SavvySingleMom :
It's a constant cycle of grieving your old life, learning to manage symptoms, thinking you've got it handled and feeling a bit "better", and then getting new symptoms and starting all over again.
2025-07-27 19:15:37
0
diana :
lost 2 jobs. would be sick all the time. everyone gets tired of you getting sick or not feeling well. literally 0 compassion when you're chronically ill
2025-07-28 22:20:39
9
mauramerkle :
Ive just been diagnosed with pots and I had to quit my job. I was a gardener and I loved my job. I have no clue what to do anymore
2025-07-23 22:04:47
19
Charlie|mummytoboys :
I know it's a silly thing to be sad about but I was going to go to aulton towers with my friend next weekend and I was so excited when my sister reminded me that I can't go on big and fast rides anymore so it would be a lot of travel and money to not be able to do much once I'm there and it's just another thing I really enjoyed doing that I can no longer do 😔
2025-07-24 08:53:09
0
Schmezra :
my hair and makeup (when I can do it) is the only thing that makes me me anymore, I lost my job a year ago and a lot of friends too, I spend my days sleeping and miserable. I mourn the person I was before, a gardener and artist, now I'm mostly bedbound.
2025-07-27 00:34:56
4
trashpandas___ :
It’s changed absolutely everything about my life and not positively
2025-07-23 20:25:22
34
Leo Phillips :
Absolute factsss
2025-07-28 13:19:33
0
SassyTiffany :
I had a friend text me and say they were having a “a Tiffany energy day” I was so upset that my name was a description of how he felt having no energy because he was able to go to work and work hard enough that he could then sleep and get better.
2025-07-24 14:20:49
0
DjFinckFunk :
it is definitely a wake up call. chronic pain sucks!!
2025-07-25 19:44:06
0
Kerri :
Have been sick for 3 years but only just recently got my official diagnosis and even though I knew it was likely pots the whole time, it’s been a huge struggle these last few months adjusting to the idea that this really is my life now😔haven’t been able to work in 2 years or really leave the house for the last 1
2025-07-24 08:05:19
0
jamie :
Got diagnosed with severe gastroparesis not too long ago and it’s life changing in a bad way 🥲
2025-07-23 23:10:32
5
sarahwags :
I’m with you. Thanks for making me feel less alone. The friends and family who don’t believe you or just disappear is crushing. And lately I’m on a kick where I’m cancelling Dr appts bc I don’t believe I’m ever going to improve… we’ve been trying everything since 2020.
2025-07-24 12:57:57
4
Julia|GQ LIVE HOST|🩷 :
Yep legit
2025-07-28 21:51:24
0
jamie :
Y'all get new treatments?
2025-07-27 10:09:09
0
CGoesMoo 🇨🇦 :
Ppl don't realize the only reason a pass as "normal" is due to meds. Even then, I still get bad flares if I do too much
2025-07-28 11:58:44
0
jt456 :
not to mention the doctor appointments and procedures. most people think its just going to the Dr when in reality its a bunch of expensive sometimes invasive tests for them to tell you they can't really find anything
2025-07-23 20:16:09
1
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