drautoimmune
Region: US
Wednesday 23 July 2025 20:11:07 GMT
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Purple Ribbon :
Oh sure, they explain that right after they tell us it's all in our head.
2025-07-24 15:11:18
272
pencil :
I have to get help with getting out of bed most days.
2025-07-25 10:50:24
0
alyssa :
I mean I have it bc ive crohns disease and autoimmunes tend to pair off
2025-08-01 14:32:14
0
Sunny :
Lower back issues,, actually feel like I’m paralyzed
2025-07-24 06:09:11
29
Dana :
I would like more information on this please
2025-07-25 13:42:56
0
Mandi with an I :
The joint pain that is so severe I break out in a sweat
2025-07-24 06:14:01
40
Kerrigan Bridges :
I had a CT show sacroiilitis and erosion so my rheum ordered lab work and all of my inflammatory markers are normal and I’m HLA-B27 negative. I have a pelvic MRI next month to get another look. My rheum is suspecting AS especially with my mom having psoriatic arthritis (she also has RA). I have reoccurring lower back pain that wakes me up at night and wake up with in the morning that goes away after an hour or so after being up and moving around. I also have random hives, regular aches in my fingers wrists elbows knees etc, brain fog, fatigue, reoccurring sores on my scalp, minor off and on swelling in my fingers, and worst of all chronic reoccurring neck pain for the last 7 years in the right side of my neck next to my spine and up to the base of my skull that shows visible swelling and causes awful headaches and migraines that Tylenol and ibuprofen just won’t touch. My rheum doesn’t suspect AS causing my neck pain since only my lower back showed signs in the CT and I just had a neck X-ray that showed nothing. Could my neck still be related to AS? And could my other symptoms still be AS even with normal labs and hla-b27 negative
2025-07-29 20:05:51
0
Jesselove80 :
I feel so stiff in the morning , fatigue is insane before a flare 😞 I also get iritis
2025-07-25 09:57:19
7
valkyrie89 :
I have CPPD due to Gitelman, I'm 36, my thoracic spine is already starting to fuse sadly, also chondrocalcinosis of my costosternal joints ... fun times
2025-07-26 01:41:14
0
Karen :
My daughter has Crohn’s and AS.
2025-07-26 06:27:31
0
Mike Baker :
I was diagnosed with AS 15 years ago. I take immunosuppressants. I had started running at that time and asked the doctor if I should quit and he said no. It's probably the best thing for you. It turns out he was right. My initial feeling was that I should really take care of myself and not do anything, but I took my doctor's advice. Since then I have run 24 half marathons and a full Marathon. I regularly run 12 to 15 Mi a week. I've cut back to 10ks and 5ks now, but there's no substitution for physical activity. now I'm nearly a unicorn when I am around other people my age. I'm 76. I have reduced my intake of inflammatory food. I'm careful about what I eat.
2025-07-25 04:45:30
4
Briarwood Farm :
I have it with fibro. I haven’t been on biologics in 10 years. I’ve been doing acupuncture and Chinese herbs since and it helps but I’m tired of being tired and the pain.
2025-07-29 16:28:41
0
Jdbeartx :
Uveitis flares, and pain all over
2025-07-24 11:14:16
8
Kersti Joshua Nielsen :
All of the things!
2025-07-30 01:56:25
0
Tonya :
same with psoratic arthritis, my SI joints are so ba
2025-07-24 04:07:16
13
Nickeyp72 :
So how do you treat it?
2025-07-25 00:48:26
11
justagoatfarmer1 :
Fatigue and brain fog first then the pain
2025-07-25 00:20:44
6
Kate Beth Skidmore :
The pain and fatigue for sure!
2025-07-24 05:20:47
1
elizabethrozdziel :
so are you gonna tell the poor people how to fix it .
2025-07-25 22:50:23
0
Shannon Thompson :
So how to help it
2025-07-25 14:57:57
1
Susie :
My sister has Crohns and AS
2025-07-25 03:09:37
8
Pamela Stripling-Barber :
my daddy has it. by the age of 78 his neck was so bent that it cut off his throat and he couldn't swallow. he lost 25% of his stomach at 24 due to ulcers and then the rest of his stomach about 65 yrs old due to ulcers causing internal bleeding.
2025-07-24 23:41:32
3
Momoftwins :
How do you fix the gut?
2025-07-24 12:32:22
3
[email protected]🍉 :
your suggestion? I have a 26 yo that can't walk
2025-07-24 01:43:45
1
H482 :
I can’t sit or walk for more than 5 mins.
2025-07-25 00:19:31
1
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