DrLeilaIsSad
Region: US
Thursday 24 July 2025 23:10:16 GMT
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Brockleheezy :
SikTok doesn’t like it, but a lot of mysterious diseases are undiagnosed depression.
2025-07-25 01:26:50
441
rheummd :
Hi rheum here, hypermobile EDS does not have a genetic test as of 2025 so I can understand why genetics would decline. As for rheum, hypermobile EDS is managed primarily with physical therapy and pain management, so unless the rheum is in a large ivory tower institution where they have an EDS program/dept, there’s not much more a community rheum could add to the management of hypermobile EDS beyond diagnosing it by criteria
2025-07-25 12:14:27
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lanamamajama :
Respectfully, having spent 10 years trying to get diagnosed with a chronic illness, during which time I lost my job and started experiencing SI because I was so fatigued and in pain 24/7. I don't care why you guys do it. My children were 8 and 10 when I got to that point. They are the only reason I'm still here. It's good that you've identified this, but this shouldn't be an excuse. Don't ask us as patients to understand. Talk to your fellow physicians and start being the change that makes medicine better for everyone.
2025-10-13 19:55:28
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₊˚⊹ ᰔ austin james ᰔ ⊹˚₊ :
if someone comes in with concerns and without even looking at their labs ur first response is to groan and roll ur eyes that tells me everything i need to know about u. no, that wasn’t the point of this video. but that tells me you are simply not a good dr and should not be a go
2025-07-26 23:14:29
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Octopod :
I don't really understand rejecting a referral. I have and will never even if it sounds insane. I would feel a little insulted if one of my referrals was rejected.
2025-07-24 23:39:27
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Ktp24 :
I’m a family NP and dread when I have a patient bring up concerns of hEDS, Lyme, POTS, MTHFR, anything thyroid or cortisol related etc because they get rejected as referrals then wind up in non evidence based care plans they find on their own 😭 I do want to help. It’s just the EBP doesn’t always support their clinical picture
2025-07-25 23:17:37
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No :
I want to say this is not meant to be demeaning to primary care NPs/PAs but I do think they contribute to this. There are referrals sent by them where the patient lacks basic history or workup. Like referring for chronic Lyme with the main symptom being fatigue and a basic history reveals the patient works two jobs and sleeps 4 hours a night Or has OSA.
2025-07-25 13:30:02
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Dr. Mike DC, MS | No BS Chiro :
Thanks for stating the Shady labs. Pisses me off
2025-07-25 12:11:58
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deedbeed :
the bizarre thing is when everyone acknowledge the suffering see that you ve been to the most obvious option... and than without any (further) actual appropriate care and nothing changed its k just done... and gaslighting starts you've so long been under care off... yes I was and NOTHING appropriate was done not even the main symptom discussed...
2025-09-18 15:03:11
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lisabradley926 :
no one sees EDS patients
2025-07-25 00:03:01
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evisceratetheechoofexile :
You educate yourself and take over their care. Dont dismiss them like everyone else.
2025-07-27 02:34:30
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Green Lantern MD :
A number of decades ago Robert Wood Johnson in NJ opened a Lyme disease specialty clinic where they saw referrals, self-referrals, and referrals from referrals, everything from self diagnosed to tertiary cases. After a few years they revealed that of the 13,000 patients they had seen, 12,000 simply did NOT have Lyme disease. They were shocked, and I’m sure the patients were angry rather than relieved.
2025-07-25 00:29:44
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Tower of Tangled :
My issue with the rejected referrals is it’s frankly insulting. I’ve evaluated the pt, worked them up, and am now at a place where I need a specialists expertise and they won’t even see the pt. I understand the non physician reviewer of the referral is rejecting but it wastes so much time for them to cancel the referral just for me to resubmit with the request for physician review. Not only are we dealing with this, but also the BS of insurance cos! It’s exhausting 😫
2025-07-25 13:17:53
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Xtina :
I think the only referrals I’ve ever had denied as a complex patient with “rare” chronic illness were because the doctor wrote the referral blatantly wrong.
2025-07-28 22:30:14
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Slaydi :
This feels uniquely American. In Israel, a patient gets a referral and schedules an appointment and I don’t think the specialist even knows the diagnosis beforehand. If a GP refers, the specialist sees them
2025-08-17 17:33:50
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.ceilseal. :
imagine what it does to the patient
2025-07-26 01:25:30
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Jake :
As someone with spinal titanium screws in pelvis and feet, I personally feel many people who think they have “autism” or POTS are doing it and getting documentation for eventual disability payments. I tend to try and believe everyone but I think a lot of people claiming they have all of these mostly untestable things don’t know what serious disability is. Nor do they care. And it affects those who really need disability payments.
2025-07-26 19:23:10
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✨Goda✨ :
Think “THIS SYSTEM IS BROKEN AND IS FAILING PEOPLE” rather than deflecting the system’s inadequacy onto patients. Please. I dislike this differentiation between “actually” sick people and… ???. Like those people are struggling or they wouldn’t be looking so hard for answers. We can’t leave them behind.
2025-07-25 19:34:01
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hassan nasser467 :
During my residency one of my attending used to say : if they consult you with no valid consult , go see the patient and try to formulate a valid consult for you to answer
2025-07-27 00:59:06
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Tsa :
I think it’s better for patients to not anchor to a diagnosis that the medical community finds controversial and instead try to find a more academic clinic and hope for the best. Unfortunately even if one person says it’s PANDAS/chronic lyme/etc, others will not.
2025-07-25 01:58:11
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CardioMD :
Is this unique to Columbus? I don’t have the time or energy to review every referral. I just see who is on my schedule. I reject zero patients
2025-07-24 23:41:29
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Katie 캐이티 :
Legit had a rheum tell me no one in the practice treats chronic fatigue syndrome. I didn’t have any positive inflammatory markers, but the EXHAUSTION was scary. And it was not getting better. So that was fun
2025-07-25 15:55:31
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PhOenix625 :
Patient seeks care for painful periods. All signs indicate endometriosis and PCOS. Patient dismissed with dnc for fibroids told no ending because bc doesn’t help. Gets diagnosed laparoscopiclly ten years later.
2025-07-26 20:12:00
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Sabrina Marie :
My only concern with specialists refusing to see these patients is the potential for that to reinforce the anti-science / anti-intellectualism that the MAHA movement is pushing in favor of alternatives that don’t have scientific backing. Also where you say it’s the “front office” refusing, does insurance or lack thereof play into that decision?
2025-07-25 01:02:52
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CaptainMacBeth :
HERE FOR MOLD TOXICITY SLANDER
2025-07-25 21:32:20
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