@evelynmiller48: MS pain isn’t “just in our head.” It’s real. It’s relentless. And it comes in more forms than most people realize.. nerve pain, muscle spasms, spasticity, musculoskeletal pain… even things like trigeminal neuralgia and Lhermitte’s sign. Sharing this because awareness matters. If you live with MS or love someone who does, you know how much it can impact daily life. 🧡 #msawareness #multiplesclerosis #chronicpain #ms #multiplesclerosisawareness #chronicpainawareness #chronicillness
Been diagnosed 11years ago and ever since I gave birth I progressed to spms so just the pain of surviving is what gets me
2025-07-26 20:20:05
4
Mallory Anne :
Newly diagnosed, I’ve experienced a lot of spasticity, stiffness, and muscle pain. Mainly in my hands. Not ideal for a teacher lol
2025-07-26 15:29:32
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melissa tiger :
how hard was it to get diagnosed. I was told fibro and I really do not think that is true. I am so exhausted trying to get someone to hear me
2025-08-01 16:33:30
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Jeff Inks :
Back pain and always feeling sore keep moving everyone 💪🏻
2025-07-27 18:11:23
1
Jordyn Lynn :
My entire body has ached all over for the last month - like I was hit by a truck or like sick aches. All over! Mornings are hell - I have a hard time trying to get my baby in and out of her crib lately 😭 I was sure if it was the Kesimpta or MS or we need a new bed 😩
2025-07-30 01:17:45
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Brendan Rodriguez :
I can only get comfy when I sleep by tucking my legs in.
2025-07-27 03:17:51
2
jenport79 :
I was diagnosed about 2 weeks ago. Also diagnosed with arachnoiditis in my L5 so it was a double whammy. As a hyper-active individual that has run 12 marathons this is absolutely life-altering for me to be diagnosed at 46…I’m still in the “this isn’t happening to me” stage
2025-07-26 14:21:31
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Jaime :
I have all of these and the MS "hug", it hurts so bad!
2025-07-27 10:43:45
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sunnydayz_08 :
I have not been diagnosed yet but I have lesions on my brain from my recent mri and I have burning pain in my head and limbs and sharp pains in my head and legs and a different type of burning in one spot in my legs. Also electrical shock pain in my limbs and head. And numbness like feelings in my arms and lower legs
2025-07-31 04:49:27
1
Lisa Hoffman :
Question. Does ms make you fall? I have had significant falls in 7 months.
2025-07-28 00:48:12
1
Lazach22 :
thank you so much for this. I have saved it to show friends/family to help with understanding what happens to me although I am told, "but you look fine.".
2025-07-29 05:02:12
1
Dina Begnoche :
Joint pain!!!! Once I’m up and moving it’s fine but it takes a hot minute to get there.
2025-07-31 16:17:04
1
Wayne Charles Stevens :
had ms 23 yrs..was lied to the entire time ..3 yrs ago i fired my drs and started ivermectin..6 months had no pain..3 yrs an no pain ,video onmy page
2025-07-26 15:10:20
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Stacey Boyer :
I struggle with my daughter understanding my MS even though she is. PT she thinks I’m a sissy and need to suck it up. So it is hard not being able to talk to your family about your health.
2025-07-28 15:35:26
2
Randal :
Lower back of my head, especially the left side! The ache is so strong and stops me in my tracks!
2025-07-31 05:10:58
1
vb224skk :
Humidity and heat make my nerve pain so intense too. I have almost all of the same symptoms you describe, I have Fluoroquinolone toxicity. So hard to describe the pain .
2025-07-26 19:34:07
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GingerRail :
I love following you. I swear you speak the same thoughts and feelings as I do everyday. Thank you for sharing and speaking not just your reality but the reality for all of us with MS. You make me feel validated 🙏🏼🩷🫂
2025-07-26 19:51:47
6
Ames :
my neck has been in pain wveryday for a little over 2 yrs now. The spine is random but on a day it flares up its like a woodburner going down my spine when I move. I dont so much those days!
2025-07-26 15:01:28
2
user8525199791974 :
I’ve been dealing with Myofasical pain in my back since symptoms started almost a year ago. Tigger points injections didn’t work my pain Dr is going to do joint injections and then a possible nerve ablation
2025-08-01 04:18:56
1
MJones :
This lumbar puncture I got was the absolute worst thing that I could have done because it has made me feel 1000 times worse it doesn’t go away. The headaches are consistent. I can barely walk. All I’ve done for the last seven days is lay flat on my back in my bed like an invalid
2025-07-27 15:08:53
1
CatLover :
Ohhh Tri Neur, oh that’s the best part 😭
2025-07-31 02:17:04
1
Yanira Hernandez :
What does everyone take for the pain?? Because what I’m supposed to take isn’t working. Gabapentin.
2025-07-28 16:57:06
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Allen Martin :
❤️my worst pain is my spasticity first thing in the morning after being in bed all night. Im assuming that this will only get worse because i have PPMS 🙃
2025-07-27 19:09:14
3
Gabs :
I have MS and have all pains 😔
2025-07-28 08:54:42
1
Tricia Turtle🧡🧡💙 :
love this explanation 🙌
2025-07-30 01:04:43
1
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