King Elle Noir
Region: US
Saturday 26 July 2025 14:51:49 GMT
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brinn :
Girl I see you. I have nothing helpful to say but I am so sorry. I hope you get an answer soon
2025-07-26 20:29:56
5
Dee :
I had the same issues. I went through the fistulagrams, I went and spoke with the dietitians OFTEN, I was doing all the right things, but I still had potassium issues constantly. My nephrologist associated it with my diabetes with no definite answer, none of it makes sense and the centers just make you feel like it’s your fault Even though you’re literally doing all the right things. This is a wicked disease and it’s so hard. Sorry that you’re dealing with this.
2025-07-27 12:58:23
1
Child of God 1111❤️ :
You are still here, you have purpose. God gives the hardest battles to His strongest warriors. 🙏🙏❤️❤️
2025-07-27 17:49:40
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Leanne :
Do they check your sodium at the same time? Sodium and potassium work together, so if your sodium is low, potassium elevates.
2025-07-27 01:09:09
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Ivorie Nicole :
It’s okay to be scared 🥺 you are asking all the right questions.
2025-07-27 08:34:49
2
autumnnnnnnn :
Praying for recovery, healing and peacefulness for your mind. This would be so anxiety inducing for me and i have baddddd health anxiety from so much happening at once, all the time, and living in the hospital too. Hugs friend. Im praying for a better outcome and some answers. ❤️
2025-07-27 02:26:41
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Dannielle Chevone :
Have you thought about doing homehemo? Or PD?
2025-07-26 15:29:57
0
King Elle Noir :
I’ve also been prescribed valtassa (different form of lokelma) once per day rather than only non dialysis days. Sometimes even twice a day.
2025-07-26 14:52:46
0
Lulu :
Praying for you 🙏🙏
2025-07-27 01:59:55
1
yalco :
diyet ve anti potasyum kullanabilirsiniz. yemek arası içiliyor
2025-07-26 20:27:26
0
Ivorie Nicole :
Two questions: 1. how often do you work with a dietitian? 2. Other than potassium, how are your labs?
2025-07-27 08:39:07
0
$kyy :
🙏
2025-07-27 06:40:14
1
King Elle Noir :
💚💚💚💚
2025-07-27 13:09:00
1
Chris Katsiada :
I am pretty sure I've heard before something familiar, they can find the mechanism that's happening Hemodialysis → temporary potassium removal, but not sufficient.No food or insulin intake before and after → inhibition of potassium entry into cells. Catabolic state during sleep → potassium exits the cells.. Sleep / hypoventilation → possible acidosis → further potassium efflux. Waking up with hyperkalemia and symptoms (muscle weakness, cardiac arrhythmias, etc.).the doctor should find that mechanism instead of "your body is dying " everything fas a reason and mean something
2025-07-26 16:16:55
2
Angela Washington :
I would be curious to see what your acid bath is. If they are using a 2k maybe switch to a 1k for the first 60min of treatment. Then back to 2k.
2025-07-26 15:05:41
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PupperMomma :
just a thought but how is your kt/v with your labs? is your fistula functioning properly? have you had it evaluated by your vascular surgeon recently? I've found in my practice that if your electrolytes are off despite dialyzing appropriately your access may not be functioning properly. I hope you can get this figured out.
2025-07-26 15:24:19
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