@misha.griffis: I wanted this video to be shorter, but by the end of it, I could not redo it or do a ton of editing. I definitely crashed right after. Plus, I get a lot of pain and weakness in my hands so editing can be challenging. I hope this still helps! Please note that this is NOT normal fatigue. I’ve dealt with some level of fatigue issues most of my life. Fatigue from ME/CFS (or similar/related illnesses) is a whole other level of fatigue that is hard to understand unless you’ve experienced it. I also forgot to add that this is why chronically ill people can make it to certain events if they can plan ahead. If they rest long enough leading up to something, they can use all that energy for that event, but of course they will also expect a crash afterwards. This is how I’m able to parent. I plan all of my energy around taking care of my kids and Kevin. 🫶 ##postexertionalmalaise##pem##pushcrashcycle##chronicillnessawareness##singlemomlife##kevintherescuerott##potssyndrome##dysautonomia##mecfs##pacing##fatigue

Misha Griffis
Misha Griffis
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Tuesday 29 July 2025 12:12:16 GMT
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crazyhungrykats
CrazyKats :
This is very true, and I would add that mental health can affect the level of energies too. And depends also on how much energies you need to deal with other illnesses you have, which fluctuates daily too. 😓😣🫂 The dog's face, though 🤣🤣🤣🤣😹😹😹😹😹💜
2025-07-30 11:23:53
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louisacurrier
Louisa Currier :
It’s so challenging to navigate … I don’t really have the energy to plan AND do things
2025-07-30 12:01:40
1
miss.wendy.johnston
wonderboys mum :
I resonate- I have Narcolepsy and it's brutal. love to you xxxx
2025-07-29 16:01:24
0
becboo61
‘Chronicles’ of a Mama Midwife :
Yes 👏 this is fantastic it’s great to have a visual representation of what I feel thank you for sharing
2025-07-29 20:12:20
1
sarahbryant936
Sarah Bee 🐝 :
This is perfect as always honey. I’m glad it took longer and meant that I could understand it.
2025-07-29 13:12:27
2
louize.h
203 :
my kids are on summer holidays send help... seriously what can I do to pace now
2025-07-29 17:16:48
0
debs0679
Debs :
definitely will send this to family, friends and possibly my boss. I have heart failure and if I use that 30% energy in one day it doesn't get replenished the next day. So I sometimes have to leave some energy if I have to do something the next day. Sometimes just getting out of bed and taking a shower takes my daily energy but still have to work, cook, clean
2025-07-29 15:47:28
1
mahdiyahya633
MAHDI FAMILY 🍉 :
🙏🙏🙏😭😭😭I am sorry for the comment. We are the Youssef family from Gaza. We lost everything. We are dying of hunger and fear. Please help us. The link is in the bio.
2025-07-29 12:51:31
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