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@remanghadah: #في هذا اليوم @؏ــوملــﻲ🌸🩷 @sereen

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Wednesday 30 July 2025 00:02:03 GMT
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Yall keep praying for our sweet Lilly... even with the devastating diagnosis she's not showing symptoms just yet... praise the lord🙌 Both diagnosis are extremely rare.... One is fewer than 1000 people have this disease and the second is fewer then 100 that have even been reported in the medical literature... So rare the pediatrician knew nothing about it and unfortunately CHOA doesn't have any available appointments until November and Emory is even further out than that 😔 To tell a momma she's gotta wait for answers when something is wrong with her baby is pure torture and im trying to be strong and not filled with fear,anger and doubt every single day. But if im being honest it has consumed me every day since we found out. We've got a few referrals to get the process started and will be putting her under for the first time to have her mri and were praying we won't get anymore bad news. We've got a long road ahead of us with all the testing she has to have but were praying for a miracle and making the most out of the time we have now🩷 No matter what happens, or how bad it seems we have today and must not waste it away with the worries of tomorrow... #raredisease #rarediseaseawareness #prayersneeded #faithoverfear #4monthsold #prayforus
Yall keep praying for our sweet Lilly... even with the devastating diagnosis she's not showing symptoms just yet... praise the lord🙌 Both diagnosis are extremely rare.... One is fewer than 1000 people have this disease and the second is fewer then 100 that have even been reported in the medical literature... So rare the pediatrician knew nothing about it and unfortunately CHOA doesn't have any available appointments until November and Emory is even further out than that 😔 To tell a momma she's gotta wait for answers when something is wrong with her baby is pure torture and im trying to be strong and not filled with fear,anger and doubt every single day. But if im being honest it has consumed me every day since we found out. We've got a few referrals to get the process started and will be putting her under for the first time to have her mri and were praying we won't get anymore bad news. We've got a long road ahead of us with all the testing she has to have but were praying for a miracle and making the most out of the time we have now🩷 No matter what happens, or how bad it seems we have today and must not waste it away with the worries of tomorrow... #raredisease #rarediseaseawareness #prayersneeded #faithoverfear #4monthsold #prayforus
I hate getting up at 7 to early #nahidagenshin #GenshinImpact #genshininpactcosplay #nahidacosplay #genshininpactcosplay #nahidacosplay
I hate getting up at 7 to early #nahidagenshin #GenshinImpact #genshininpactcosplay #nahidacosplay #genshininpactcosplay #nahidacosplay

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