@mamanester: Just driving in the sun for 10 mins today. I think bc I have a cold and we’re getting over a virus that my lupus is flaring. Anyone else? #lupus #flare #autoimmunedisease #lupuswarrior #lupusawareness 💜💜💜
I am sure I have lupus. But no one believes me. I can’t seem to get the tests I need. I don’t have the rash but all other symptoms. Any advice?
2025-09-04 01:22:11
9
Nicole Johnson :
Weird question. Do your ears get bright red too? I’ve noticed this on my daughters face but her ears are also bright red and flaming hot
2025-09-05 00:48:35
5
𝓙𝓮𝓼𝓲𝓬𝓪 :
Window tint and sunscreen! I also have lupus and rosacea
2025-09-03 23:16:28
3
Kelsym13 :
Waiting for results to come back to see if I have lupus. 😫
2025-09-03 23:44:34
2
Mama :
What blood work do I get for this
2025-09-04 22:52:38
2
savage :
My RA does this to me 🥺
2025-09-04 23:48:29
1
Tay :
This is me everyday!!😩 and it’s around my eyes and a little on my forehead 🫠
2025-09-05 01:34:38
1
Jaimejo :
I use 100 percent sunblock...it helps me alot
2025-09-04 06:04:20
1
Brooke :
I get the same exact rash! I also have this happen when im in a flare 😭
2025-09-03 16:47:40
1
Sara :
Ugh same. I think I caught that adenovirus plus overdid it moving stuff. Sigh. My people.
2025-09-08 02:05:18
1
❤️🔥🖤Herb🖤❤️🔥 :
What other symptoms do you have?
2025-09-04 20:52:09
1
DeeDee :
Just got diagnosed myself
2025-09-05 02:29:33
1
Sarah Franco :
And why does this always happen when you have to go in public . ugh
2025-09-04 18:57:45
1
Marla Cooper :
feel this 💜💜💜
2025-09-04 22:05:37
1
quinnrclark1 :
It truly isn't an easy journey💜 Pretty much me on any given day!! Some days worse than others!
2025-09-04 00:26:00
1
Stasia 💋 :
Yes girl! I feel ya!
2025-09-04 01:26:21
0
beckyK :
Ohhh no 🥺 have you tried Saphnelo infusion? It’s working so good for me
2025-09-06 00:39:01
0
Melody :
Prednisone to the rescue here is what my face looked like last week I have SLE
2025-09-04 18:50:30
1
Aj :
Sorry
2025-09-04 21:09:15
0
karina❤️ :
I've got told so many times i have rosacea due to all the red in my face. but my ankles hurt so bad and they are days my legs hurt as if i ran a marathon & i have 3 days with my right hand hurting as if i hurt it but i didn't 😫 now i feel like i need to go get checked
2025-09-05 05:46:14
1
Britt 🌼 momma•wife• :
PCP said I have Lupus. Went to my Rheumatologist today for results from bloodwork to be told I do not have lupus. I have all the symptoms tho including butterfly rash 🤷♀️
2025-09-04 22:09:54
3
TinaB8080 :
I get SAPHELLO infusions and it takes care of all that ❤
2025-09-06 00:21:29
0
To see more videos from user @mamanester, please go to the Tikwm
homepage.