Parasocial Princess
Region: US
Friday 19 September 2025 01:34:50 GMT
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Sophie 🏳️🌈🇬🇧 :
I often get a feeling like I have low blood sugar, weird floaty detachment where thinking feels like wading through treacle. But sugar has no actual affect on it. I just feel like I’m lacking *something* but not sure what. Sometimes it’s a few minutes, sometimes a few hours. Drs always assume I’m diabetic when I try to explain it but I’m not. I’ve had SO MANY tests for it.
2025-09-19 11:03:27
1128
OzzyAsmodeus :
I am laying down anytime im not walking
2025-10-07 21:41:58
0
Leighleigh :
So so many of us have reactive hypoglycemia and it isn’t fun either
2025-09-19 13:00:53
1565
Hayley ♏️ :
Is that why I have pmdd then
2025-10-07 10:56:34
0
NobodyBeatstheLiz 🆘 🇺🇸 :
Is this why i feel better lying down
2025-09-20 01:43:00
1310
emily.m.koscielny :
I’ve started wearing compression socks and OH MY GOD I feel more alive ??? Even just the smallest amount of blood flow back to my head makes such a difference
2025-09-19 16:39:59
613
Jess :
This honestly needs to be a new medical specialty. We need doctors who understand autonomic dysfunction. As we realize how NOT rare this is, AND with the increase in Long Covid which is basically also dysautonomia, we truly need a medical specialty dedicated to this.
2025-09-19 14:56:48
2585
sevyn<3 :
IM SICK OF STUDIES COMING OUT SAYING THE SAME STUFF IVE KNOWN FOR YEARS.
2025-09-19 10:08:09
6429
Oh well :
I have to think about breathing and sometimes I forget. I didn’t realize that was weird 😅
2025-09-22 13:44:38
416
arielllllllllll :
ever since my pots symptoms started i would get a weird feeling in my head that i literally described as “it feels like there’s not enough blood getting to my brain” it’s crazy how a lot of us instinctively know these things, if only doctors would actually listen to
2025-09-19 05:25:23
1415
Liz :
I know I have dysautonomia, but what can be done for it?
2025-09-19 02:02:43
18
Alexandra :
Not diagnosed... yet. But, can you PLEASE tell me if they can cause uv intolerance? it's running my life 😭😭😭 (I've been screen for other things that could cause it already)
2025-09-20 09:51:10
1
Jax :
Does anyone else suffer with complicated or hemiplegic migraines?!?!
2025-09-21 03:58:45
18
ChronicallyTiffany :
WAIT pancreatic insufficiency can be caused by EDS??????
2025-09-19 05:39:25
35
Spicy :
Waiting for them to link Chiari and CSF flow into this
2025-09-19 22:04:37
134
Kiwi 🇳🇿 :
Anyone get unexplained rashes? Severe itch and burn
2025-09-21 19:08:04
179
✨sp✨ :
I started day brushing my face because of acne…. Tell me why my fatigue and brain fog also has been getting significantly better since…. Dry brushing inscreases circulation….
2025-09-21 18:38:38
52
RoseS :
Does anyone sweats like crazy? Like, unless you are in a fridge, you are melting and people look weird at you? (Head, face, neck, back, everything sweats). Also, what about getting dizzy and almost vomiting if you are a passenger (not when driving)? What about sleep paralysis? Anyone!!??💀
2025-09-21 22:46:30
45
olivia :
is this why laying down feels so much better? like overall my body feels good laying down and horrible standing up
2025-09-22 04:21:31
916
👑✨🍰Prince Zayn🍰✨👑 :
Does dysautonomia make you stop breathing randomly???
2025-09-25 01:30:56
4
sara beth boland (remus) :
Is this why I associate wearing my super tight leggings with having a better day
2025-09-23 23:03:44
33
Quirky D (agender edition) :
I used to always have cold feet until they discovered Venus insufficiency in my legs I had an ablation and my feet are warmer and the kicker now I sweat more and it improved my dysautinomia somewhat. BUT because I failed the beighton they won’t go further in testing 😏
2025-10-05 22:32:08
0
emperished :
doctors need to stop acting like POTS isn't a big deal too... all these young women just being treated like it is normal to be fainting and hitting their heads day after day.
2025-09-23 11:10:39
208
elizwayman :
I passed the tilt test, but I faint in my real life regularly.
2025-09-19 03:58:27
256
marissa :
can’t wait for the CCI/POTS connection to be more widely acknowledged
2025-09-19 09:43:58
443
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