Ellie Collins
Region: US
Tuesday 30 September 2025 16:23:07 GMT
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Raelee :
WAIT I HAD/HAVE GPA IVE NEVER MET ANOTHER YOUNG PERSON WITH IT.
2025-10-07 00:10:10
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TiffySimp :
My grandmother had Wegners when I was very young and she lived to 83! She did all the treatments and everything and she recovered very well. Sorry you have to deal with this daily ❤
2025-10-02 21:22:20
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MrsSteinbrecher :
I did ivig for 11 years, but they recently came out with a new injectable medication for my autoimmune. People would ask me all the time if I would have to have infusions my whole life. Now I do a quick 90 second injection myself instead of 40 grams of ivig for 3 days every 19 days.
2025-10-19 22:52:53
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Cephalopun :
Thanks for sharing, you’re a star and make me laugh so much. I’ve wondered in the past but didn’t want to pry. I’m currently in the autoimmune diagnostic endless tunnel (deada** in the cardio waiting room rn) and I swear I just read about this disease bc of a positive ANCA test. What timing! 💙
2025-09-30 17:53:46
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Dee 🧡 :
Followed you for Taylor Swift videos but thank you for sharing this. Invisible chronic illness awareness is so important. My son is a childhood cancer survivor and faces similar issues post cancer. I became a regular blood donor after donations saved his life during high dose chemo. Glad blood donors are able to help you also ❤️🩹
2025-10-03 22:42:52
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❌ J ❌ :
What did DT or RFK do to you?
2025-09-30 22:24:10
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user589659578729 :
You’re the strongest person I know. I’m grateful every minute of every day for you and am so proud to be your mom. I love you. ❤
2025-09-30 19:47:00
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Theglitterfartdirector :
Goodness. This is so much to take on at 14 years old. I can’t imagine the gravity of it at that age.
2025-09-30 19:37:00
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Isabelle O’Connell :
Love you queen props for raising awareness and sharing ❤
2025-09-30 16:48:20
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Cheyanne Schmidt879 :
I have a very similar situation where I have a rare autoimmune disease and it’s not as well I’m so over the last 23 years have my immune system has slowly deteriorated, which severe
2025-10-02 02:42:59
2
Jill :
OMG! I was diagnosed with Wegeners when I was 14 also!!! The pain was horrible. I hope you’re doing well now! I ended up needing a kidney transplant due to the difficulties associated with it.
2025-10-01 03:21:54
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SkyBlueScout :
Blood donors are life savers ❤️sending so much love ❤❤❤
2025-09-30 17:19:46
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paramedic436 :
I’m 38 and have EGPA and immunodeficiency disorder. I take rituxin every 6 months and IVIG monthly. Rituxin wipes my immune system to where I need the IVIG (I had pneumonia for 8 weeks last time I got sick) but without the rituxin, I can’t breathe and end up hospitalized. I was diagnosed with the EGPA at 34.
2025-10-02 06:25:09
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krusselpuff :
SCIG buddies! Mine is for a very different but also super rare autoimmune disorder. Also switched from the IV and it’s so much better. There is an AMAZING Facebook group for SCIG and IVIG.
2025-09-30 22:34:48
24
Stasi Russell :
I adore your Taylor content. My kiddo has a rare disease. Thanks for sharing your story. My kiddo likes your Taylor content too. It’s nice to see others with rare diseases that she can relate to. Thanks for bringing us joy.
2025-10-14 22:39:37
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Kayla :
Girl this is crazy! Found out I had Lupus at 18 did rituxan for a year and now I’ve been dealing with CVID since 2020. I have so many questions 🙃
2025-09-30 18:09:44
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Taylor Behrends :
How old were you when you went subcutaneous IG? My son is 4 on lifelong IVIG they told me eventually he can do subcutaneous at home!
2025-10-17 14:50:57
1
Jennifer Scavone :
Love you my girl ❤
2025-10-13 21:23:32
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❤️🔥HellaHighAtHogwarts ❤️🔥 :
Whatever works to give us a happy and healthy Ellie 🫶🏻 and I think you are extra rockstar for going through everything since you were so young ❤️❤️❤
2025-09-30 16:34:55
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B swizzle :
I have to say thank you! From watching this video and reading the comments, I was able to find a condition that my son has had for 16 years. We were literally celebrating last night to have a real answer. It has answered so many question and made so much sense for what he was dealing with his whole life! Thank you!! ❤️❤️❤
2025-10-11 21:51:03
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tony stark :
Love you Ellie!
2025-09-30 16:53:10
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cfmom20 :
Ohhhhhh well I knew there was a reason I liked you 😏 I too do SCIG, was sicker than shit for 10 years and same couldn’t lift my head off the pillow some days
2025-10-02 19:28:32
3
Peaches :
Thank you for sharing!! I love your videos.
2025-09-30 23:01:47
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GingerSteph :
DON’T FORGETTT LOVE
2025-10-13 01:58:41
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Linnie Richelle 🍀 :
It’s rhythmic timing the vessels.
2025-09-30 17:12:42
2
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