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2025-10-05 21:42:19

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Today was a long, emotional day, so here’s everything that happened — all in one place. I was up at 7 a.m., grabbed a shower, and we got Carter ready to start this long morning. I dropped Carter and Chris off first, then met them for his first appointment at 8 a.m. for surgery consent. We had already gone through all the risks and benefits with the doctor, so today was the final signatures and confirmations. Last night at the Ronald McDonald House, I met some very sweet ladies who told me about requesting the “no-nos” (the arm braces to keep him from touching his incision) and the “cubby bed” for after surgery. I’m still planning to remind the team tomorrow — because y’all know I’m going to advocate for him every step. At 9:30 a.m., we met with Dr. Harmon, Carter’s neuro-genetics doctor, and a genetics counselor. Ever since I watched the ABC special about the four girls with Chiari, I’ve been researching nonstop. And everywhere I read, people kept mentioning a connection between Chiari and EDS. So I straight up asked — right in front of Chris: “Is there a chance Carter could have EDS?” And the doctor said yes. Hypermobile EDS doesn’t usually show up on genetic testing — it’s a clinical diagnosis. They can’t officially diagnose it until he’s at least 7, but based on everything, they’re going to treat him as if he has hypermobile EDS now. And honestly… it explains so much: the Chiari the progression the flexibility the easy bruising the fragile-feeling skin We also learned something important today: Carter’s Chiari could actually be a result of hypermobile EDS. When connective tissues are too loose, the skull and neck don’t support things the way they should. That can allow the brain to sit lower — which leads to a Chiari malformation. So this may not be random at all. It may all be connected. And yes — he can have UBTF, SDHA, Chiari, and EDS all together. They don’t cancel each other out. They stack and complicate things in different ways, which is why his team has to look at his whole medical picture. During that same appointment, they also did cheek swabs for whole genome sequencing to dig even deeper into his genetics and see if there’s anything else contributing to what’s going on. It takes time, but it’s another piece of the puzzle. At 11 a.m., we headed to pre-op at Baptist, where we met with the anesthesia team again — going into detail about the type of anesthesia, the safest intubation method, positioning him carefully because of the EDS concerns, and protecting his skin and joints throughout the surgery. They were very thorough and reassuring, but hearing every step as a mom still hits your chest differently. Then came bloodwork… and that part was rough. He was upset, and it broke my heart. I shared a video and photo with subscribers afterward (not during the actual draw because they don’t allow that). Seeing how shaken he was was enough. And now the big thing: Surgery is early tomorrow morning. We check in at 5:30 a.m. Please keep Carter in your thoughts and prayers as we get ready for this huge step. We’re doing everything we can to make sure he is safe, supported, and surrounded with love. #CarterStrong #ChiariWarrior #ChiariMalformation #EDSAwareness #HypermobileEDS

Today was a long, emotional day, so here’s everything that happened — all in one place. I was up at 7 a.m., grabbed a shower, and we got Carter ready to start this long morning. I dropped Carter and Chris off first, then met them for his first appointment at 8 a.m. for surgery consent. We had already gone through all the risks and benefits with the doctor, so today was the final signatures and confirmations. Last night at the Ronald McDonald House, I met some very sweet ladies who told me about requesting the “no-nos” (the arm braces to keep him from touching his incision) and the “cubby bed” for after surgery. I’m still planning to remind the team tomorrow — because y’all know I’m going to advocate for him every step. At 9:30 a.m., we met with Dr. Harmon, Carter’s neuro-genetics doctor, and a genetics counselor. Ever since I watched the ABC special about the four girls with Chiari, I’ve been researching nonstop. And everywhere I read, people kept mentioning a connection between Chiari and EDS. So I straight up asked — right in front of Chris: “Is there a chance Carter could have EDS?” And the doctor said yes. Hypermobile EDS doesn’t usually show up on genetic testing — it’s a clinical diagnosis. They can’t officially diagnose it until he’s at least 7, but based on everything, they’re going to treat him as if he has hypermobile EDS now. And honestly… it explains so much: the Chiari the progression the flexibility the easy bruising the fragile-feeling skin We also learned something important today: Carter’s Chiari could actually be a result of hypermobile EDS. When connective tissues are too loose, the skull and neck don’t support things the way they should. That can allow the brain to sit lower — which leads to a Chiari malformation. So this may not be random at all. It may all be connected. And yes — he can have UBTF, SDHA, Chiari, and EDS all together. They don’t cancel each other out. They stack and complicate things in different ways, which is why his team has to look at his whole medical picture. During that same appointment, they also did cheek swabs for whole genome sequencing to dig even deeper into his genetics and see if there’s anything else contributing to what’s going on. It takes time, but it’s another piece of the puzzle. At 11 a.m., we headed to pre-op at Baptist, where we met with the anesthesia team again — going into detail about the type of anesthesia, the safest intubation method, positioning him carefully because of the EDS concerns, and protecting his skin and joints throughout the surgery. They were very thorough and reassuring, but hearing every step as a mom still hits your chest differently. Then came bloodwork… and that part was rough. He was upset, and it broke my heart. I shared a video and photo with subscribers afterward (not during the actual draw because they don’t allow that). Seeing how shaken he was was enough. And now the big thing: Surgery is early tomorrow morning. We check in at 5:30 a.m. Please keep Carter in your thoughts and prayers as we get ready for this huge step. We’re doing everything we can to make sure he is safe, supported, and surrounded with love. #CarterStrong #ChiariWarrior #ChiariMalformation #EDSAwareness #HypermobileEDS

Máy cấp gió tươi - hút ẩm - lọc không khí G2, lưu lượng cấp khí sạch 500m3/h, công suất hút ẩm 60-80L/ ngày.

Máy cấp gió tươi - hút ẩm - lọc không khí G2, lưu lượng cấp khí sạch 500m3/h, công suất hút ẩm 60-80L/ ngày.

ну просто..🛐 #руслантушенцов #смнруслан #смн #cmh #cmh228 #fypage #edit #fyp #рекомендации #эдит #aynatskn

ну просто..🛐 #руслантушенцов #смнруслан #смн #cmh #cmh228 #fypage #edit #fyp #рекомендации #эдит #aynatskn

chuyen doi ta #lyric #sharechu

chuyen doi ta #lyric #sharechu

ومن كان فيها ذامقام ودولة فخير له جمع الفضائل لاالذهب #اناشيد_اسلاميه #قصيدة #اكسبلور #fyp

ومن كان فيها ذامقام ودولة فخير له جمع الفضائل لاالذهب #اناشيد_اسلاميه #قصيدة #اكسبلور #fyp

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