Remember to put your oxygen mask on first. I am so very sorry.
2025-10-12 17:51:31
794
👵🏾 :
Please get power of attorney asap. Everything will require it and having this type of obstacle is even harder going thru anything detrimental.
2025-10-12 22:34:42
632
Tracy Young Gwynn :
Robin Williams had Lewy Body dementia…I am so sorry for you and your family.
2025-10-12 23:01:41
72
Erin Doyle :
Keep an eye out for UTI as well , they can really cause a lot of well beyond the urinary tract in older individuals. I’m sorry your family is going through so much
2025-10-12 19:40:20
377
Amanda :
As a memory care nurse who deals with this daily, find a support group now. Talk to people who know what you're going through. Educate the kids in words they will understand but don't go into tons of details. It will help when things progress.
2025-10-12 18:03:48
322
Friday :
Did they do a ct scan and check for normal pressure hydrocephalus?
2025-10-13 02:56:23
3
kkadi28 :
My dad had lewey body dem. It's quite different from Alzheimer's...more frontal lobe... personality changes. Be on the look out for obsessive behaviors, very common (sexual, gambling, spending). Also never let them give him anti-psychotics...makes lewey body worse. Many caregivers don't know the difference in the two diagnoses. My thoughts are with you while you navigate this, it's very stressful
2025-10-14 14:58:36
7
Poerava :
Louis body usually comes with Parkinson’s my father in law had it
2025-10-15 09:17:29
2
EB010101 :
how old are the older kids?
2025-10-12 19:52:55
2
kwajkalena :
He's such a good man, he does not deserve this !! I'm glad your kids are helping you! ❤❤❤
2025-11-04 18:31:07
0
niffy :
Oh no 🥺 I’m so sorry to hear this.
2025-11-08 04:04:44
0
German Shepherd Lover 💙🇺🇸💙 :
I’m
2025-10-14 00:02:55
0
a :
I’m so sorry to hear this. Have followed since the beginning of your journey with the twins. Please take care of yourself through the caregiving journey, as much as possible.
2025-10-12 17:42:30
82
xtrance :
❤️❤️❤
I'm so sad to hear this. My mom had early onset and in the beginning they also thought it was depression. It's tough for kids to watch, mine were small and I had to let my mom go into a facility because she was becoming very fearful and aggressive.
2025-10-12 17:44:36
34
Here2CheerYouOn :
This is devastating. My heart goes out to your family.
2025-10-12 18:16:28
121
MsVickiL :
I’m so sorry to hear this, my mom had regular dementia and that was hard enough to deal with. I’ll keep you in my prayers. I recently found that I had Parkinson’s so I can kind of relate to what your husband‘s going through. You might see your town or city or county whatever offers any respite programs. I found an adult daycare if you will or I could leave my mom for a few hours or the day once or twice a week. It was nice to have that option, even though I didn’t use it as much as I could have. Also make sure you look into any programs that they might offer for dementia.
2025-10-20 22:56:43
0
Lo-Lo 🍉 :
The moment you said she didn't think it was Alzheimer's I knew. my grandpa had LBD, and my grandma had been overcompensating for him so we didn't know how bad it was until she got too sick to care for either of them. I'm so sorry you're experiencing this. Sending love and strength ❤
2025-10-26 18:03:45
0
justmandie :
i think LBD is what bruce Willis has. im so sorry.
2025-10-12 18:11:17
10
Cara Piccerilli :
LBD is a hard diagnosis. Definitely look into meds for it because there are some promising ones to slow the progression. It's also possible it's a different diagnosis (friend's dad was initially diagnosed with LBD but it was revised to parkinson's). Regardless, I'm sorry
2025-10-12 18:04:29
39
Brittley Mae :
My grandma had lewy body dementia and all your feelings are valid. Thinking of your whole family.
2025-10-12 18:34:48
76
Lulu 💜 :
I'm so sorry. my mom has early onset Alzheimer's in her mid 50s in scared for my life now
2025-10-12 19:11:20
2
coopchar1 :
I’m so sorry.
2025-10-16 18:49:10
0
emduck44 :
My mum had LBD i understand
2025-10-18 04:19:45
0
Dama_theAfrican_Surro🇰🇪🇺🇸 :
Sending hugs!
2025-10-19 14:15:31
0
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