@ashleylou.09: 💜🦋 Currently experiencing symptom number 5! I’ll be going for an EMG in a few weeks. What odd lupus symptoms do you experience? #lupus #lupuswarrior #lupusawareness #autoimmunedisease

Ashley Lou 🦋
Ashley Lou 🦋
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Region: US
Monday 13 October 2025 21:31:27 GMT
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spooniebeauty_
spooniebeauty_ :
I get numbness in my toes also, but only my big toes on each foot. So weird lol 🤣 I also have tremors, basically shaky hands. And I lose my grip when I’m holding something.
2025-10-15 06:22:57
0
_dolceandgianna
Gianna 🩷 :
Yess all of them plus weight loss, random pains on my sides near my abdomen, night sweats, nocturia, insomnia, what a mess lol.
2025-10-13 23:12:33
6
aldana25_
𝐴𝐿𝐷𝐴𝑁𝐴𝐻 :
All the symptoms you mentioned match what I have — and I also have many other symptoms. My ANA test result was 1:80 positive, speckled pattern, but they still didn’t diagnose me with lupus — why?
2025-10-13 21:39:28
3
_nothin.g_1
ambut :
I am also diagnosed SLE early dis year. I am also experiencing those symptoms. I am registered pharmacist
2025-10-15 06:17:47
0
cree.78
cree.78 :
All of those except menstrual, plus joint pain, gastrointestinal pain, extreme fatigue, tremors, and headaches
2025-10-13 21:44:03
1
pauladevine0
Paula Devine :
I have all those cycle completely stopped
2025-10-13 23:14:18
2
aimeesanders95
Aimee Sanders :
I’ve had two positive ANA’s and have every symptom. Was told I’m most likely in the early stages of lupus but I have to wait until I fall apart before anything is done 🥲🥲 how much more do I have to fall apart!?
2025-10-13 21:47:40
3
karlacalderon014
KC2025 :
Do you get lip twitching ?
2025-10-13 22:14:01
1
light0445
light :
Yes I been experience all these symptoms, but very emotional 🥺my first appointment is coming up next month any advice
2025-10-14 17:51:54
1
forgivengreg
maral 🦋 :
my weirdest symptom is autoimmune Hemolytic anemia lol
2025-10-13 22:31:45
1
dannik843
Danielle Kilkenny :
I have all these symptoms and have had 3 positive ANA’s but everything else came back negative . They are saying g it’s not lupus but fibromyalgia
2025-10-14 13:28:59
1
shellbell4ever
Michelle Marie :
burning in my face especially when my low grade fevers happen. Muscle twitching and a neurologist put me on a med to help. I haven't been diagnosed yet though
2025-10-15 01:39:07
2
geriatricmilleniallez
🌈💙WhatDoYouMean? 💙🌈 :
in the last year, I've started exhibiting dystonia in my hands and feet. My ankles are really bad. it reminds me of horror movies where their necks snap around at an unnatural angle. my ankles do that all the time lately
2025-10-14 15:02:10
1
sweetmystery630
💋SweetMystery💋 :
I have all those as well. Lupus is so fun……said no one ever.
2025-10-13 23:09:38
3
janell_hinojosa
Jay ✨🦋 lupus princess 🦋✨ :
Numbness in just your toes or the entire foot ? 😳🦶
2025-10-13 22:35:38
3
not_yo_bitchh_xoxo
Lexie 😉 :
I’ve had all of these, told my rheumatologist and he told me the burning sensation sounds neurological so now I’m getting evaluated for either MS or Neuropathy 🙃 my ANA and DsDNA came back negative so it’s not autoimmune. More vascular or nerve related I guess.
2025-10-13 21:50:43
1
bleven82
Bleven82 :
Muscle pains, fatigue, reynard syndrome, stomach pains, dry mouth, itching all over and all of the things you said
2025-10-14 06:17:26
1
patrysarcher
patrysarcher :
tremors, bruises, hairless, joint pain, brain fog, muscle pain, numbness in my toes and fingers and fatigue
2025-10-14 16:17:19
1
urstruly_kierra
🌻Kierra🌻 :
Yep 3 out of 5 of those for me lol temors, light headedness, headaches too
2025-10-13 21:35:46
1
marimay092
❌️marimay092❌️ :
I have lots of 3,4 and 5.
2025-10-13 22:15:55
1
sassyfirewife80
Monica :
Muscle spasms all over my body, burning sensations in my hands and legs, extreme fatigue, dry eyes and mouth, mouth ulcers, joint pain and swelling in my hands and knees. Horrible SI joint pain. Confussion and brain fog, memory issues, migraines all the time.
2025-10-14 16:47:11
1
faithfulservant2god
Kimberlynn Linton :
Muscle spasms all over body, dry eyes, burning sensations in my face arms and legs too, dry mouth, ulcers in mouth, headaches, severe joint pain and inflammation, brain fog, fatigue, hair loss in patches, stiffness, blood clot in my left leg
2025-10-14 16:30:19
1
angelnenni
Angel Murphy Nenni :
The burning in the leg is it both or just one
2025-10-14 20:53:45
0
uzymughal
uzymughal :
I get number 3 to 5 aswell
2025-10-14 19:02:10
1
naturallygelxstephie
naturallygelxstephie :
persistent weight loss till I've become underweight, tingling and red fingers feels like they are on fire, random numbness in my right toes sometimes, extra heavy periods, muscle hardness and pain. the list goes on lol
2025-10-13 22:50:12
1
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