@keep.going.jones: #crohnsdisease #chronicillness #gastroenterology #pillcamera #endoscopy

Keep going Jones
Keep going Jones
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Region: US
Tuesday 14 October 2025 20:02:03 GMT
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carter080803
carter080803 :
I have ulcerative colitis and it was a bit of a process to cover my biologic med. I had to try infusion meds first which didn’t help and then they covered it. But I have an amazing GI doc that fought for me. But everyone responds differently. Good luck!!
2025-10-15 03:05:24
1
gemma.lou.rn
Gemma Folds :
GI Biologics Coordinator here- ask about starting Skyrizi.
2025-10-15 10:09:50
26
tanyamdb
tanyamd🇨🇦 :
biologics, I think you meant...
2025-10-15 23:54:55
15
hockeychick_21
Hockeychick_21 :
Ask your doctor if you can do FMT.
2025-10-15 08:37:15
1
sunrayes
raye :
had to take an immunosuppressant for a year before insurance approved Entyvio (biologic). thinking of you!
2025-10-15 19:33:50
0
npetruska
SunnyGrace :
Hey being diagnosed with the same. I have a couple of suggestions you could try if you want. they helped me. You could try removing Sugar from your daily intake. That will clear up the internal inflammation. Have your doctor prescribe Methocarbamol (prescription muscle relaxer) for the muscle spasms. That does not make you tired. *Please note it's okay to enjoy a sugar treat a few times throughout the year. Just don't make a habit out of it. You seriously won't miss it.
2025-10-15 07:56:05
2
stangit1
Stangit1 :
Get the hiatal hernia fixed! Well worth the surgery!
2025-10-16 04:35:49
3
suelyon072
Sue Lyon :
I took Librax for an ulcer many years ago. It did not make me sleepy
2025-10-15 00:31:52
5
.themrs71
.themrs71 :
My teenage son is on Remicade which is a biologic & our insurance approved it quickly & with no issues. He will be switching soon because it’s not working very well now. 😞
2025-10-15 06:31:09
4
crystal_rn1982
Crystal :
Are you in the U.S?
2025-10-16 01:12:24
1
milliesmilklady
Milliesmilklady :
I have moderate Crohn’s disease. They would not approve my biologics until I failed 2 regular medications (budesonide, immuran). I hope they can help you feel better!
2025-10-14 20:08:59
7
natalieanncatalinemorri1
Natalie Ann Cataline :
I’ve had Crohn’s for 37 yrs..
2025-10-15 16:30:25
1
middlemeg
Meg :
I had a hiatal hernia and had it fixed.
2025-10-15 14:59:28
2
tammy616
Tammy :
How long did it take for the camera to pass? Did it give small intestines?
2025-10-15 13:53:15
1
brandiwaits4
Brandi Waits :
Sorry, I don't mean to overstep, this is the 1st time I've seen your videos but I just wanted to say that I have been on Librax for a couple years now. It only makes you sleepy the 1st couple of times you take it because it has a very small dose of a benzo in it, but the sleepiness/tiredness will go away. For the most part, I only take it as needed but if things are bad, I take 2 pills 2-3 times a day around the clock & it really does help. (That's per my GI's instructions too) She did have to send in a PA for it & I THINK it took about a month for it to be approved because it is so expensive, but they did approve it. Hope this helps!
2025-10-15 17:41:01
1
karencurcio0
Karen Curcio :
Biological
2025-10-15 09:29:14
0
candicelaley
Candice 📚💕 :
The meds are biologics! I’ve had to try 4 before finding one that has helped a lot. I was diagnosed with Crohns in 2021. I recommend joining groups on FB so you can ask questions and have a group of people who understand what you’re going through. You got this. 💪🏼
2025-10-15 12:05:06
1
5thelement
5th :
get second opinions
2025-10-15 09:18:12
1
thesawmillerswife
💕The Sawmillers Wife🪵 :
I just found out I have acute diverticulitis. Is that anything like crohns?
2025-10-15 01:46:51
1
meaganreininger
Meagan :
I got my hiatal hernia fixed and omggg it improved my quality of life
2025-10-16 03:03:49
5
crimsoneagle46
Katieeeee :
I don't know your story but please make sure the doctors are very sure it's Crohn's before they start biologics. I hear it's very hard to diagnose correctly. They diagnosed my dad with Crohn's (or so they thought) via pill cam and calprotectin levels, etc. and put him on humira. He ended up getting an infection because it's an immunosuppressant. Long story short, many biopsies/pathology results later and they can't seem to find any Crohn's so he was misdiagnosed and put on a drug that didn't help at all. Not trying to scare you but no one deserves to be misdiagnosed!
2025-10-15 00:24:48
4
kris10ell
Kristen :
I take Enbrel (a biologic). Been on it for over 10yrs. Hope you get help soon!!
2025-10-14 20:55:27
9
fey_ree_
fey ree :
if you struggle to stay awake you might wanna go see sleep med, if you haven't already.
2025-10-15 04:54:20
2
doodlemommax3
DoodleMomSara :
Say what? You in US? You need a new Gastro. I have crohns as well.
2025-10-15 22:34:22
4
meredithpittenger
Meredith Pittenger :
My husband is on skyrizi and was giving the tip to apply to their parent company for “financial aid” he applied and was given the medication for one year for free. I believe they don’t even ask for income, or despite our income level they still awarded it.
2025-10-15 03:26:32
2
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