@sarahtoddhammer: Replying to @saiyamanaka I’m so mad about this lol [Video Description: ST, a young white woman with long blonde hair, is speaking on screen. Text on screen at the beginning of the video reads “I made the mistake of not trusting my own knowledge 🫠” Text on screen throughout the video reads “NO ADVICE PLEASE”] #D#DisabilityTikTokD#DisabilityAwareness
The fact that they jumped straight to the lumbar puncture is so wild. I had the same symptoms/IIH, and just got put on diamox and then had a CT and was going to have an MRI but the diamox fixed things so 🤷🏻♀️A lumbar puncture wasn’t something they felt was pressing at all.
2025-10-16 18:41:43
44
BetterOffAutistic :
spinal headaches are some of the absolute worse pain ever
2025-10-18 12:42:55
3
marquesa :
This is such a frustrating, scary situation and I am so proud of you for handling it with grace and pushing through it!
2025-10-16 16:26:38
60
2 :
This happened to my sister too! so frustrating.
2025-10-16 17:42:46
10
Toni :
omg smae. my lumbar puncher was horrible. and the headache after was the worst. and then they just sent me to deal with it
2025-10-29 16:02:45
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MelodyAnna 🇨🇦🎹🇨🇦 :
I'm so sorry this happened to you 😢
2025-10-16 22:57:06
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AG :
This is so wild to me as a nursing student. If I am even the slightest little bit unsure about something I look it up, ask my coworkers and then contact a doctor if were still unsure. Hell sometimes me coworkers tell me something and I STILL look it up or contact the doctor to be 110% sure. Im so sorry this happened to you
2025-10-16 16:38:07
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DontEatTheMushroom! :
It’s so easy to doubt yourself when a professional tells something different. I would have doubted my own knowledge too in that moment
2025-10-16 17:22:15
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karenwichmann :
I've heard spinal headaches are horrific. I'm so sorry this happened to you.
2025-10-17 03:42:31
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distaaybled :
Also on this IIH, diamox, probable LP soon
2025-10-16 23:06:13
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Lucky🔻 :
Ugh I’m so sorry. What a nightmare! It’s so frustrating when we do know better than what we’re being told but obviously we’re going to listen to the professionals only to find out they’re wrong 🙃
2025-10-16 19:54:51
2
Crystal 🇨🇦 :
That's wild, and sounds very frustrating.
2025-10-17 03:46:10
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Micheline's_Magical_Rattos :
I feel you, I've had to deal with frustrating consequences of wrong medical decisions in the past too! And I also specifically double-checked in my situation because I felt like what they were suggesting made no sense.
2025-10-16 23:19:39
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Val :
WOW they jump to lumbar puncture before an MRI???
2025-10-18 23:04:00
3
Beki :
Ughhhh I recently had a lumbar puncture too and it was one of the worst most painful medical procedures.
2025-10-18 01:05:07
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Omggti :
ugh this is like the easiest thing that the doctor could've caught. its the same reason of you're getting checked for gluten infomercial you can't eliminate gluten before the test
2025-10-16 16:52:42
12
Laura :
Oh hell no. Of all the things to do unnecessarily 😭 I will never forget how hard it was when my dad had one.
2025-10-16 22:45:02
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rgeivett :
I’m so sorry you had to go through that for no reason! That’s really frustrating. At least you’ll know for the future if they suggest a lumbar puncture again.
2025-10-16 16:33:38
8
Brenda :
I hate that we have to know more about our condition than our doctors.
2025-10-18 16:58:56
1
꒒ꀎꈤꍏꋪꍟꉓ꒒ꀤꉣꌗꍟ :
i have intracraneal hypertension. the lumbar punción failed... worst pain of my life 😭
2025-10-16 16:48:48
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kindofinteressant :
Oof that sounds so uncomfortable.
2025-10-17 10:21:01
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ornery_beagle :
omg, that is NOT a procedure I'd wanna go through without a really good reason!
2025-10-16 22:37:36
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aleksander 📚🖋️ :
It’s really frustrating when we doubt ourselves and our intuition and try to trust the system only to have been right in the end. I remember your videos about the lumbar puncture and it sounded AWFUL. So sorry you went through that but glad your doc thinks she’s on the right track identifying what was causing your symptoms.
2025-10-16 16:34:48
2
Phoenix :
God that reminds me of when the doctor said I had to go off all my allergy meds for allergy testing. Days later I call them in agony and they tell me that I can take my meds and they’ll just do a different test
2025-10-16 23:17:12
1
Shantae Jade :
My results on the meds was 36 😭 so just imagine before the meds.
2025-11-02 18:48:34
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