Dr. Grace Felton | PT, DPT
Region: US
Monday 27 October 2025 01:54:25 GMT
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Tam Johnson🇦🇺 :
this tracks. if my pillow isn't in the right spot my head tilts more forward and I wake up with wicked headaches
2025-10-27 02:10:58
261
Jenn-it-all :
so what would they do if you do have this ?
2025-10-27 03:53:56
26
username8993 :
Is that the same as chiari malformation type 1?
2025-10-28 11:21:09
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miss function :
we do not have access to upright MRIs where I am
2025-10-27 11:17:30
32
Scorpion's Tongue :
I have hEDS and I have 85% in the scale up there, I am also diagnosed with chronic migraines and cluster headaches. But my doctors won’t care and they will just ignore this information.
2025-10-27 05:00:37
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One Hour With... :
might a chiropractor be able to help with this?
2025-10-27 10:34:17
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beetleinabottle :
Oh, do you have to get an upright MRI to diagnose this?
2025-10-27 09:25:51
2
NotThatDeep :
i've been told I have instability there and that's causing me to have to most horrific spasm for the last 6 months. I've been trying to strengthen my neck but I am seeing no progress and just live of muscle relaxants
2025-10-27 02:08:49
3
LynneK 🎀 :
same! i had been rear-ended causing post-traumatic cci and after 7 years of exhausting all options and prolotherapy I did get a fusion occipital to c2 and 3 months post-op now and start PT next week!
2025-10-28 15:14:22
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katecaven0 :
Thr only 1 available to me is a 10hr drive away and costs 100s . Simply not an option, especially seeing I'm so affected I can't work
2025-10-27 22:38:42
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k80ruth :
I started sleeping with a pregnancy pillow and neck brace!
2025-10-28 13:36:37
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shewhowalkedaway :
But upright MRI is so hard to find a place! Then Most people live many hours away from one. Then insurance. This isn’t accessible care or information. It doesn’t help us advocate on what we can do about it.
2025-10-27 21:08:15
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Amanda Beth :
Is there treatment for it?
2025-10-27 02:24:09
5
GemeTV 🌈🍉 (Gemesimo) :
So my brain is literally kinky? Getting scans for CCI soo, requested from the geneticist who diagnosed my EDS 🤣
2025-10-27 05:26:51
5
Louise Palmberg :
I’m 2 months post op from my occipital fusion for exactly this! I got fused from the skull down to C3, plus a Chiari decompression. It’s still early on in the process, I’m very much still recovering and am in a collar, but it just feels right. There’s a whole new level of safety and stability in my body, and I can’t wait to see what I can do with it. I’m so excited for a (hopefully) more active and full life!!
2025-10-27 15:15:09
5
Madden_Brittany :
My neuro said that the laying mri typically shows it when I asked about upright, but also there's no upright anywhere near me I called everywhere
2025-10-27 05:11:23
2
Tove :
what is the treatment for this?
2025-10-27 09:31:40
0
MICHELLE But call me💓CHELLE💓 :
Do we have anything for EDS and MCAS,POTS and severe emotional lability sudden surge of emotional meltdown uncontrollable emotions at severely heighte
2025-10-28 07:40:12
1
courtmarie312 :
does or is this affected by a chiari malformation? in the process of getting tested for/diagnosed with MCAS, POTS, and EDS. Diagnosed with a chiari malformation back in 2020 after having 3 mini strokes but was told it was too small for surgery to help... I'm at my wits end. seeing a new PCP Friday and am compiling a list of all the symptoms of each and how they all overlap and are comorbidities of each other. (that might not be the right word. comorbidities. idk. feels wrong. but my brain doesn't really work correctly 🙃)
2025-10-27 06:06:08
2
Ana-Maria :
my physio and I have been suspecting this and my rheumatologist made me get an xray but he said the results indicate there's no problems but now with research i know that thats not how you should be testing for it. is it worth going back in and getting an mri?
2025-10-27 02:55:01
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Mâri Selder :
yes to 15 of them, all types of headaches including migraines and cluster. brain damage due to my sleep apnea.
2025-10-27 23:25:43
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Milky Pretzel Illustration ✨ :
Its HELL in the UK trying to get an upright MRI there is none. I got a laid down one and it showed nothing. I have hEDS, POTs, arthritis and migraines, going on about 8 years now trying to find an answer for my neck pain and issues that come along with it.
2025-10-27 21:25:38
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Laura 🦓♾️🐙🏳️🌈🍉 :
Not nausea and vomiting?
2025-10-27 18:10:49
0
Astral♿️🐈⬛ | COMMS OPEN :
good luck convincing your doctor of this. My vision problems, dizziness and extreme neck pain are juuuuust anxiety
2025-10-27 18:21:12
2
Pure Soul Guidance :
Took me 5 years to find a surgeon that not only saw it but believed me. Had brain stem decompression and c0-c2 fusion. Best day of my life waking up from that surgery.
2025-10-27 03:17:04
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