@mageholy: I have many years of documentation of these rashes since 2019. I have hEDS so they’ve been largely ignored due to my many other medical issues. It’s their turn tho! Hoping to get some relief as they’re very uncomfy when they flare up. #medicalmystery

Moe✨
Moe✨
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Monday 03 November 2025 05:36:40 GMT
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kittenshocked
KittenShocked :
my nose and cheek bone are is always red 😭
2025-11-03 06:04:30
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em_dashes
em :
i had a similar rash for years that always worsened with my MCAS. they sent me the rheum to rule out lupus, then to the derm who dxed roseacea and told me that the majority of malar rash is roseacea, but because it can be lupus they always rule that out first. i still get mild recurrence with bad MCAS flares, but it's almost completely controlled by azelaic acid now. if the allergist isn't helpful, my dermatologist has been way more helpful than I ever expected. hope you get some answers/solutions!
2025-11-08 23:37:25
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pukkipooks
Krissy :
Get tested for lupus babe
2025-11-03 05:48:31
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lalalouies
MamaL :
Lupus can do this
2025-11-03 05:44:46
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audly.hearing
AuDly Hearing :
MCAS (mast cell activation syndrome). It’s a comorbidity of hEDS
2025-11-07 18:20:35
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ashleyautistic
Ashley Lezak :
I get this from MCAS. For me it's often only one side.
2025-11-08 19:09:23
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ruthithescribe
𝕽𝖔𝖔 📖 :
I have rosacea and tbh that’s what it looks like to me. Is it warm?
2025-11-03 05:43:39
1
deartheromantic
Tiana Marie :
You ate too many strawberries??? lol
2025-11-03 05:42:18
2
alethalareal
Alethala :
sun allergy
2025-11-03 05:53:26
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lazydemogorgon
LazyDemogorgon :
If western medicine can’t give ya an answer see an acupuncturist, mine fixed my swollen face when my GP gave up on me 😅
2025-11-04 02:46:05
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icekapp.winter
Joshua Kapp :
You’re turning into a fairy princess?
2025-11-03 13:37:02
0
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