@erind_28: Quick update on Miles has reached the halfway point in his reduction on steroids, but with that said in the last week and half we are seeing concerning signs/symptoms of a relapse slowly happening. We met with the Pediatric dr today and shared what we are seeing increase redness with him the eye, spikes of pain and bruising on upper and lower eyelids and he’s been fatigue and sleeping a lot. I really like the Pediatric dr we are working with and I don’t feel medically gaslit into pushing off our concerns. She was equally concerned that he is in the beginning stages of a relapse and will be reaching out to the inflammatory neurologist and endocrinologist drs as they led the reduction care plan for Miles and also asking ophthalmologist team to weigh in on Miles case and increasing symptoms. His last bloodwork was still showing inflammation, along with other markers that are abnormal. #milesbrave

ErinD🇨🇦

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Wednesday 05 November 2025 02:20:49 GMT