@sara.helenn: That prep was notttt worth it #chronicillness #ehlersdanlos #gastroparesis #medical #hospital

Sara<3
Sara<3
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Region: US
Wednesday 05 November 2025 20:34:26 GMT
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ehlers.samlos
ehlers.samlos :
They originally thought i had “just” masocytic enterocolitis before I was diagnosed with MCAS (idk if i have mastocytic enterocolitis tbh nobody followed up on that). I have more issues with fluids (than solids) with my gastroparesis which is part of why I have a port and TMI but before starting MCAS meds I couldn’t stop going to the bathroom. Endoscopy showed increased mast cells in part of gi tract for me🤷🏻‍♀️
2025-11-07 07:08:56
0
itslanna_444
Alanna 🪴🌞🌵🍄‍🟫 :
do i have tummy problems? no. do i watch every video? yes.
2025-11-05 20:47:50
367
gracewells4
kaya.rbx...tim.tin :
not the end
2025-11-06 10:12:15
7
reality_doesnt_exist
Kate :
I have Mastocytic Enterocolitis!
2025-11-05 20:39:12
64
taymo_33
Taylor :
Ughhh I’m so glad you got a better GI who’s taking things seriously!!!
2025-11-07 02:47:43
1
maryhawkins18
Mary Hawkins :
never seen such beautiful hair!!
2025-11-06 01:28:46
0
gabbiekathleen1
gabs :
Not me thinking it was seaweed in the ocean instead of your stomach 😂🫣
2025-11-05 21:26:42
15
msshortyb
MsShortyB :
I'm having a colonoscopy and endoscopy on November 24th too!
2025-11-05 22:28:15
25
handmade_by_joni
Joni :
Question! Have you had a HIDA scan? If so, how is it? I’m suppose to have one at the end of the month and I’m nervous. Do I need to take all of my piercing out? I just got my nose done a few weeks ago. 🙈
2025-11-07 01:23:16
1
macyp03
Macy :
I’ve got my colonoscopy and endoscopy on the 12th. Lowkey terrified 😭
2025-11-06 06:56:08
5
jesst718
jess 🫧 :
off topic you have beautiful hair
2025-11-05 21:05:59
141
nicki_crazycatlady
Nicki :
if you have that much stool In you would the test even be accurate?
2025-11-05 23:38:04
2
sdunbuns
Sdunbuns :
Do you know if you need visible inflammation for it to be considered mastocytic enterocolitis? My mast cell count CD117 was 58 per hpf in SI but GI said no visible inflammation so “ruled it out”
2025-11-06 02:50:51
1
laluneetlesetoile
☁️ :
Please forgive my ignorance, but how do you know you can’t absorb fluids?
2025-11-05 23:35:13
0
delaynapasap
Delayna Raen :
I got my gallbladder removed and every time I eat I feel nauseous and stomach pains and I barely have an appetite. I have a doctors appointment tomorrow 🤦🏽‍♀️
2025-11-05 22:25:53
9
namelessxtee
namelessxtee :
Did they tell you how are you going to prep for your scopes? (Like take lax by mouth or?) I’ve been doing endo/colonoscopies once-twice a year for 15 years now and i dread it everytime 🙃 tho i did come up with a fun system a couples year back and it helped
2025-11-06 06:24:49
0
zabbababababa
salismybaby :
youre literally so gorgeous dude
2025-11-06 00:09:13
0
lowkeyy_madyyyy
🫶🏻 :
Do I have any chronic illnesses or tummy issues? No. But will I always watch your videos all the way through? Absolutely.
2025-11-06 20:57:29
1
neonglitch106
Kayla :
Glad you found someone who took the time to test if you had something instead of guessing
2025-11-06 01:38:55
17
littlefoxxy94
Amanda P. 💜 :
Never believe a doc without tests proving their theory.
2025-11-07 00:19:29
0
feraltruckerwife
FeralTruckerWife :
I have to go dor a colonoscopy :(
2025-11-06 23:42:36
0
kaecinr
Kae<3 :
wait we have an endoscopy the same day 🤞🏻💅
2025-11-06 09:53:30
1
twittlebugs
Twittlebugs :
Your hair looks amazing!
2025-11-05 21:18:41
2
daniellee.nicolee
Danielle🌈 :
Side note— your hair looks amazing in this video
2025-11-05 21:49:37
15
molllywolllly
Molly :
I don’t absorb fluid though my GI tract at all and have been told it’s because MCAS.
2025-11-07 04:25:30
0
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