@thestyletheorist: Are you US-based, over 18, and dx with Long COVID, ME/CFS, or both? I am working on a proposal for my qualifying paper for my PhD, which will analyze the diagnostic journeys of people with ME/CFS and Long COVID. I'm hoping to find 4-5 individuals who I can speak with for 1 hour about what it was like for you to navigate the US healthcare system and adjust to your condition. Everything you share will be completely anonymous, and will be used to help me better understand what issues are facing this community so I can better direct my eventual full-scale research study for my qualifying paper. #mecfs #chronicfatigue #longcovid #longhauler #chronicillness
I’d be happy to help; I have both ME & LC, and a 25 yr difference between the two, so navigating the hc system has definitely been a journey.
2025-11-09 03:08:28
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Connect with ME/CFS :
This is so great! Thanks for doing this research 💜 If you want to include more severities though it’ll be difficult to find those who can interview for an hour
2025-11-09 14:56:36
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Morgan :
Happy to help
2025-11-11 21:17:34
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✨ Christie 🌙 :
Hi everyone! thank you so much for your responses, I should have enough interviewees for now ❤
2025-11-12 01:44:07
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lauren patriarca :
i meet the criteria. let me know if you need me!
2025-11-15 00:38:55
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Teenbarf :
💁🏼♀️(me, unfortunately) happy to help
2025-11-11 05:55:25
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⚝danny⚝ :
if you need any more people, i have both! i’ve participated in a long covid study if that makes a difference!
2025-11-11 23:47:20
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Ashley Berner :
Sure. I’ve been chronically ill since I was 15, I am 40 now. I’ve had Long Covid for over a year now.
2025-11-11 21:59:26
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Kala :
I’m happy to help. Long covid dx with other common comorbidities. From a medical anthro background myself and if I had the capacity to pursue ethnographic work at this intersection I’d do it!
2025-11-11 03:40:24
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LG Vane :
If I can participate, I’d be happy to help! I recently got long covid and I suspect MECFS.
2025-11-10 04:57:25
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Tiffxoxo :
I’m trying to get dignosed with long Covid but you know, have I tried taking vitamins?😭
2025-11-14 05:52:37
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