@claudiaraee: literally why are these so hard to open lol ok! 🫡 #MCAS #mastcellactivationsyndrome #eoe #dysautonomia #histamineintolerance

claudia
claudia
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Region: US
Tuesday 18 November 2025 02:46:10 GMT
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sprinklesfoxeh
✨️ Chrissy ✨️ :
I'm on cromolyn and xolair. Make sure to not eat anything 30 minutes before taking cromolyn and don't eat or drink anything for 15 minutes after taking it. Each dose (2 ampules) is good for 6 hours.
2025-11-20 16:24:54
5
_emily_h96
Emily :
It helps so much though!!
2025-11-18 03:05:53
4
marierie451
marierie451 :
Omg this made me so much worse! Xolair is the only thing that works for me
2025-11-18 16:42:15
4
samantha.lipsey7
Samantha Lipsey :
Also take vitamin c and doa enzyme to break down any existing histamine!
2025-11-18 18:34:26
4
ayekay411
AK. :
does it have any negative side effects
2025-11-18 20:04:33
0
littlefawnprincess
littlefawnprincess :
how are mcas and dysautonomia related?
2025-11-18 23:12:27
0
missypedro
Missy Pedro :
okay what is this?!😫 I just got a referral for this today
2025-11-18 02:53:49
0
breesidawi
breesidawi :
I’m on week 3!
2025-11-18 03:35:26
0
bumble7108
bee bee bumblez :
over a year on cromolyn, I rip them from the bottom and hold the lid/top with my fingers so they dont pop open accidentally
2025-11-20 17:45:28
0
heatherb564
heatherb564 :
I have a different manufacturer and they are so easy to pull apart.
2025-11-20 01:17:09
0
amiautoimmunex
ami ✨🧿 :
I’m in the UK and they don’t care what are these 💔💔💔 I rlly hope they help you <3
2025-11-19 15:05:00
0
kadel1021
Kadel1021 :
What are your symptoms? And how did you get mcas? This is how I drink my Cromolyn too lol in my festive glass 😅
2025-11-18 18:17:10
2
porschewithme
PorscheWithMe :
My doctor basically told me no point of trying this 🥲 so fun
2025-11-18 21:31:40
0
kittyytok420
Kitty :
This changed my life omg happy for you I hope it works 🫶
2025-11-19 05:24:20
1
photographyalik
Ali K | Michigan Photographer :
This changed my life for the better 😭
2025-11-19 21:58:00
0
_celia_isabel_
_celia_isabel_ :
this stuff makes me so sick. and i have to use scissors to open it 😕
2025-11-19 10:31:05
0
samantha.lipsey7
Samantha Lipsey :
Wait how much do you take?! Maybe I need to take more cause it’s def helping but I’m still reacting!
2025-11-18 18:33:44
0
carotaro98
Caroline :) :
Remembering to take this stuff 4x a day is actually the bane of my existence
2025-11-19 00:29:51
3
lifeintheslowlane90
lifeintheslowlane90 :
Low dose naltrexone all the way!!
2025-11-18 22:57:02
1
solnishko907
Solnishko☀️ :
Theres been several outages of this medication so please be aware and have a backup plan with your doc for if that happens consistently enough
2025-11-18 21:22:03
1
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