thelupusmom
Region: US
Tuesday 18 November 2025 19:56:47 GMT
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Cash :
my mom passed from systemic lupus complications, and she had every symptom and they chalked it up to anxiety, depression, arthritis, she got her final diagnosis five days before she passed from complications.
2025-11-18 21:37:26
7
♡Melissa♡ :
me 🙋♀️🙋♀️🙋♀️
2025-11-19 21:04:08
0
Michael :
I went through that yesterday
2025-11-19 13:55:06
0
LilRedghr❌️ :
Just got dignosed after 15 years of being told I was just depressed or crazy even with the symptoms,ex butterfly rash, cause I didn't have the markers. Now I do
2025-11-19 12:44:24
0
Jill Green :
Had a positive and, ALL the symptoms and was asked why it was so important for me to be diagnosed. 😣
2025-11-18 22:28:29
1
Tarra | Gen❌ Digital Sister :
It can be so frustrating and infuriating.
2025-11-18 23:15:47
1
Luna :
I feel defeated. I’m trying to get short term disability and I have multiple oncologists that I’m working with and feel like my main one has urgency but my local one just doesn’t understand and his office is normally great but now dragging their feet. I’m so sick and in pain and feel like I’m never going to get better again.
2025-11-18 21:05:39
0
BrightEyesMaryJane :
hugs too .. invisible disabilities...😭😭😭
2025-11-18 21:25:56
1
Lupuswarrior88 :
Most definitely
2025-11-18 21:14:49
1
ashleywhite3681 :
No one can tell me what’s wrong and it’s so many tests 😭
2025-11-18 20:57:44
0
user6986329853260 :
My mom went with me to a new patient appointment with all my records. The doctor addressed my mother and said the family needs to get me psychological help.
2025-11-18 21:26:59
0
Steph14 :
Yes
2025-11-18 19:59:53
1
BRENDA :
🖐he says, well you just have to deal with it
2025-11-18 21:34:15
1
I’m married :
Love listening to you
2025-11-19 10:04:49
0
I’m married :
Wish drs were understand lupus… I have 4 different immune diseases
2025-11-19 10:06:12
0
Amy🦋💜 :
I went to the er with severe pain in my back. The er doc said you have lupus and fibro.. you should be used to the pain. Told me I had pneumonia and sent me home! Turns out I had a staph infection and an abscess on my spine that of if I would have waited any longer I could have been paralyzed!! It’s funny how docs dismiss real pain!
2025-11-19 02:24:01
0
Eduarda Demelo :
Definitely me
2025-11-19 13:18:24
0
Under the Radar :
Dear lord I feel this deeply
2025-11-19 03:29:43
0
Bam-Bam the girly :
It took 5 years for them to figure it out
2025-11-19 00:34:12
1
Michele :
🙋♀️hypoparathyroidism. If the blood work is good then there is nothing more they can do.
2025-11-18 21:55:36
0
Tedslove34 :
dismissed for pots heds gastroparisis macs
2025-11-18 21:45:11
0
Sali Sal :
2 years that it was just rash. I had to request the blood tests 😒
2025-11-19 00:11:41
0
LoriG :
We all have. 30 years in. Finally have a good rheumatologist and cardiologist. Clinging to them both. At 64, I don’t have the energy to restart with other doctors. I usually can’t get to the doctor when in a flare. By the time I get there I am better.
2025-11-19 11:01:40
0
Belinda. :
👋
2025-11-18 20:43:34
0
WendytheAuto/Lupus/Pots/Scoli :
💕💕💕
2025-11-19 00:04:39
1
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