those of us with long COVID are screaming about it- but no one is listening
2025-07-18 23:48:03
422
potatosalad1081 :
Odd that you didn’t mention MECFS, which is the most disabling type of Long Covid but can be triggered by any virus
2025-07-19 12:55:19
29
henrymcgregor :
viruses don't exist
2025-07-18 22:13:34
0
Billy :
How many people suffering with Long covid had a covid vaccine & how many people who didn't have the vaccine have long covid 🤔
2025-07-19 17:28:17
40
danielle72811 :
some of us just listened to the experts from day one and have been following along the whole time. my kids and I never got it. we're fine. very thankful for experts and activists who go against the current of misinformation
2025-07-26 20:06:14
0
. :
also to mention to strange massive disruption to the gut micriobiome
2025-07-19 13:44:26
41
sarah | t1d 🇨🇦 :
Got type 1 diabetes 😭
2025-07-19 03:35:41
16
🇨🇦kim :
100%...we have been infected three times by people who work with the brother in law..I can not longer smell or taste properly after all these infections...I also have such strange dizzy spells that happen randomly I have to sit down wherever I may be..It strikes out of nowhere and is scary when my vision starts to go black.
2025-07-27 18:35:10
0
Straightgrizzly :
Long Covid 3 years daily burning pressure headaches tinnitus fatigue
2025-07-21 04:51:55
0
jessicahinckleyga :
Infertility- POI …
2025-07-26 12:08:30
0
Sidmin29 :
I was recently diagnosed with Pots , but noticed symptoms after getting covid 2022 , very frustrating illness
2025-07-19 08:57:45
43
Lorn :
My son at 15 got long covid. He was not vaccinated. He also has lupus anticoagulant from having covid 😳
2025-07-19 22:01:27
19
Dorothée :
I have RA. Stable with medication before having Covid in 2022. Since then, the medication stopped working and I am in pain everyday. My rhumato is trying different combination of molecules, but nothing is working yet.
2025-07-20 13:18:40
0
Emz :
POTS, MCAS & ME/CFS here ever since my first infection in January 2021. My life as I knew it is over. Lost everything
2025-07-19 17:37:45
12
Tammy Mitchell :
It sucks. And having doctors that aren’t educated in it is angering, sad, defeating, frustrating
2025-07-21 03:26:40
8
Hanna Ann | Plus Size POTSie💖 :
Because our government said it was over and everyone blindly followed. I’ll never forgive them.
2025-07-18 22:25:55
183
Elvis The Ginger Cat :
Any chance y’all are studying unvaccinated control groups?
2025-07-20 23:31:30
2
xslimshaeleex :
We NEVER talk about how so many of us have had CFS/ME, POTS, MCAS, Dysautanomia PLUS ALL the other debilitating conditions caused by viruses long before Covid and Long Covid were a thing!
2025-07-23 09:55:59
3
kaypfb :
My whole life literally turned upside down - long Covid affected nearly every system of my body and it’s brushed off 🙄
2025-07-19 03:15:34
51
Heersbeest :
I’ve just read some of the research and what we do know is horrifying. I don’t understand everyone collectively burying their heads in the sand. Even all doctors I see… unaware, unmasked.. it’s maddening
2025-07-22 18:48:00
1
Robin22 :
its definitely more than a cold...caught covid 2020. living with pain/fatigue
2025-07-19 16:21:15
38
user963257994215 :
I really wish medical doctors would listen to researchers like you and mask up at work to protect their patients and themselves
2025-07-19 06:25:09
14
heatherbeans454 :
Covid long hauler for 4 years 7 months😭slow blood flow through right portal vein now with no liver disease. It’s not a cold
2025-07-19 12:56:53
8
JC🪃 🍉 💜 :
My understanding is covid is related 2 sars and u only gotta look at how some of those ppl are doing after 20 yrs 2 know don’t be catching covid over n over as it’s not good
2025-07-24 01:09:34
0
LongHaulerLars :
It’s so frustrating. And after almost 4 years I think all my friends & family think I’m just dramatic.
2025-07-22 22:53:10
2
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